Hi All,
I am reaching out because I am working with a consulting firm and my client is hoping to meet with ALS patients to understand unmet patient needs and pain points specifically for ALS.
This would be an ethnographic study where you would either a) speak to a team on the phone about daily struggles with medication, mobility, or anything else or b) they would come to your home to discuss these subjects with you and potentially your caregiver as well. They would also use the in home interview to observe your daily life
The end goal is to develop a device or some kind to better patient quality of life. We are of course happy to compensate you for your time. If you are interested in helping, feel free to reach me directly at olivia.***@**** or call my number 1(646)-693-9894.
Best,
Olivia