Thanks for comments. So is there no way peripheral hyper flexibility can be ALS. WOuld the EMG of showed different results. Why can i notice weakness, i.e. not keep hold of things for long with out being in pain and legs being stiff but neurologist can not detect this?
Negative EMG indicates NOT ALS. A peripheral neuropathy with unknow origin is a possibiity. Unknown usually means that the origin is viral. Had similar symptoms for 15 months but now getting better slowly.
Also, I just want to say that you absolutely have to advocate for yourself. Nobody is going to do that for you. They are going to say "It's not this" and then send you on your way with no direction.
I came down with an infection that caused me to have severe joint pain. I was having shooting pains coming and going (arthralgia) in most of my joints. I went to one clinic....they had no idea...I was sent home. My fingers became swollen and they weren't bending the same as they used to. Went back to the same clinic....no idea. Eventually I could barely walk. I went to another walk in clinic and they said I had scarlet fever. I didn't have a doctor at the time. I finally went and got a doctor and saw him, explained my symptoms, and he said "your fingers don't look swollen to me." I could have punched him. I'm not an idiot, I knew they were swollen just by the way they felt. Anyway, I insisted to him I had strep and that I needed antibiotics (I was getting ready to go away on vacation) and besides that I could barely walk because of the pain in my joints. He did blood work and called me and said I was right. I had a strep infection with no strep throat symptoms that went straight to my joints, causing scarlet fever and then rheumatic fever.
I know you are frustrated but you have to rule all other things out first. I have anxiety, I know what the mind is capable of and that you can come down with real symptoms of diseases that you are anxious about, but the only way to really say it is anxiety is to rule everything else out.
I still think you should visit an infectious disease doctor.
The following is from a lyme website
http://www.anapsid.org/lyme/lymeseroneg.html
I'm not saying that is what you have. Obviously I'm not a doctor. But if I were you, I would be at the infectious disease doctor to see what he/she thinks.
Any more input from anyone would be valued?
Thanks for your comment. Wouldn't limes have gone if i had been on anti- biotics. I had lymes test which ruled came back negative. Are there any other infectious illnesses it could be?
This is coming out of the blue, I'm sorry, but have you thought about seeing an infectious disease specialist to see if it isn't something along this line such as advanced lyme disease?
Anxiety can cause a lot of symptoms that people are really unaware of but you can only chalk it up to anxiety after all other possibilities have been ruled out.
Any suggestions or comments would be appreciated