Aa
Convinced i have als
Hello all,
Im am 24 years old and totaly convinced i have als, all my symptoms have started about a month ago and ive been obsessed with als. My first symptoms started with constantly fatigued left arm even at rest, feeling as if i couldnt use like it was weak, although i could. Some weird feeling were associated with the left arm fatigue hard to discribe also some minor pain that came and went. Shortly after my left arm started my left calf started, it is constently tight feeling and i have a feeling of worms or something crawling in the muscle, i shake when i go down steps and i also have a strange pain in the sole of my foot almost like a cramp starting but it never developes.i also feel like my gate is screwed up but no one has noticed but me.I have had twitching all over my body but the finger twitching in left hand and the worm feeling in my left calf are driving me up a wall. I have seen a nurologist a little over week and half ago , he preformed all the test a nurologist would perform and he said in his mind this is not als. But i still cant hang my hat on those words just yet. I really want him to re issue a a new emg test ( i had a clean one a year ago) idk if im truely out of my mind in feeling like i have als or mnd , but its consuming me , im constently looking up symptoms on als forums and reading account of peoples intial symptoms. Im truely consumend by this. Anybody have any thoughts on this matter?!
Thanks,
Matt
Im am 24 years old and totaly convinced i have als, all my symptoms have started about a month ago and ive been obsessed with als. My first symptoms started with constantly fatigued left arm even at rest, feeling as if i couldnt use like it was weak, although i could. Some weird feeling were associated with the left arm fatigue hard to discribe also some minor pain that came and went. Shortly after my left arm started my left calf started, it is constently tight feeling and i have a feeling of worms or something crawling in the muscle, i shake when i go down steps and i also have a strange pain in the sole of my foot almost like a cramp starting but it never developes.i also feel like my gate is screwed up but no one has noticed but me.I have had twitching all over my body but the finger twitching in left hand and the worm feeling in my left calf are driving me up a wall. I have seen a nurologist a little over week and half ago , he preformed all the test a nurologist would perform and he said in his mind this is not als. But i still cant hang my hat on those words just yet. I really want him to re issue a a new emg test ( i had a clean one a year ago) idk if im truely out of my mind in feeling like i have als or mnd , but its consuming me , im constently looking up symptoms on als forums and reading account of peoples intial symptoms. Im truely consumend by this. Anybody have any thoughts on this matter?!
Thanks,
Matt
Oh the good old health anxiety, I'm not going to lie to you I had and have this( but very under control now). The thing with anxiety that you have to understand is, its all in the mind, litteraly. Anxiety can mimic everything, I have a phobia about having a stroke and once when I had a panic attack my left side of my face was drooping, I was convused,extremely dizzy you name it, but when I went to the emergancy room the neuro doctor took all the tests for stroke and other and what they found out was that I was far from having anything close to a stroke or anything else because I was very healthy and when I heard that I immediatley felt better again everything went away. The thing with health anxiety is or atleast I believe is that your mind is playing tricks on you and you have learn how to control it, its very difficult I know but the trick is to not pay attention to it. The sooner you realise this the quicker its going to gow away. I saw 14 doctors in two month because of my fear and everyone said the same I was fine and that I was as healthy as can be, but I refused to believe it. I am on meds now and I did a little psycho therapy and I seriouse with this it helped the world. So just try to distract yourself from your obsession and you would see it will get better, if it doesnt work go my root and seek professional help.
That is VERY common my friend. Anxiety from losing a loved one from a horrible disease.
My anxiety started after losing my grandma to lung cancer. I kind of became a hypochondriac after that for a while.
Everything is okay. Keep reading what I posted. It's LEGIT. It came from an ALS forum, from people who HAVE ALS.
You do NOT have ALS. :)
My anxiety started after losing my grandma to lung cancer. I kind of became a hypochondriac after that for a while.
Everything is okay. Keep reading what I posted. It's LEGIT. It came from an ALS forum, from people who HAVE ALS.
You do NOT have ALS. :)
6 Comments
My mother had small cell lung cancer that when to brain ahe battled for a year and half then we lost her . At 22 i was primary care giver and i completly screwed me up.
Sounds like seeing a talk therapist could help you. You are young. That's the age mine started, and let me tell you, IT GET'S BETTER. IT REALLY DOES. You might have ups and downs, but the sooner you get into talk therapy, the better. You can beat this. :)
And I'm sorry to hear about your loss. That is tough. Especially at your age being the care giver. God Bless you.
Going for a cervical mri the probaly a emg if both come back clean im going to lean more twards anxiety and hopefuly i can learn to control it
If it makes you feel better, then get the MRI. But after that, make sure you look at that MRI every time you think you have some mystery disease. It will help you. MRI's are expensive. You will be fine. :)
They are exspensive but i have top notch health benifits through my employer so the cost to me is pennys thank god . Im more worked up about the emg, because a clean emg will minimize my fears.
I've also had this fear before. You are not a lone. :)
I can almost 100% promise you, that you do NOT have ALS.
Twitching (fasciculations) is sometimes a symptom of ONGOING ALS. It's usually towards the END of it. It is seldom, if ever, a first symptom of ALS (especially if it is all over your body). Twitching is very common and is frequently caused by too much caffeine, Rx meds, fatigue, over-exertion, anxiety, stress, and many other common causes If you have twitching without clinical weakness, atrophy or hyperreflexia, your twitching is probably not from ALS, which is a very, very rare disease..
Random twitching is caused by anxiety. I have it a lot of the time. Heck, even my tongue has twitched before, and I DO NOT have ALS.
It's more than likely Benign Fasciculation Syndrome, which means nothing. It's harmless. Look it up. :) It's common with us with anxiety.
I have been twitching on and off for YEARS, and I'm not dead, nor do I have ALS. haha.
If you have pain, aches, tingling, soreness, etc., these point away from ALS. ALS is a disease of the motor nerves, not the sensory nerves. There can be pain in ALS, but it is almost always well into the disease process, when the muscles can no longer hold the joints together or when immobility has caused frozen joints, bedsores, etc.
Anxiety can be a real problem that can endanger your physical health. It is what leads many folks to fearing RARE things like ALS, but it is a self-fueling fire—the more anxious you become, the more twitches you will have, the more you obsess with perceived weakness in your arm or leg or hand, the more dents you will find… and the more you will become convinced you have atrophy. If you can’t stop using the internet to diagnose your problems, or if you cannot stay away from Dr. Google, that should tell you something important about your mental health.
100% ANXIETY.
Anxiety can do a lot of weird stuff.
YOU ARE FINE!!! :)
Take a deep breath and RELAX. It's only anxiety, and anxiety, while it can be scary and mimic weird stuff, it CAN'T HARM YOU. :)
Hope this helped!!!! :)
I can almost 100% promise you, that you do NOT have ALS.
Twitching (fasciculations) is sometimes a symptom of ONGOING ALS. It's usually towards the END of it. It is seldom, if ever, a first symptom of ALS (especially if it is all over your body). Twitching is very common and is frequently caused by too much caffeine, Rx meds, fatigue, over-exertion, anxiety, stress, and many other common causes If you have twitching without clinical weakness, atrophy or hyperreflexia, your twitching is probably not from ALS, which is a very, very rare disease..
Random twitching is caused by anxiety. I have it a lot of the time. Heck, even my tongue has twitched before, and I DO NOT have ALS.
It's more than likely Benign Fasciculation Syndrome, which means nothing. It's harmless. Look it up. :) It's common with us with anxiety.
I have been twitching on and off for YEARS, and I'm not dead, nor do I have ALS. haha.
If you have pain, aches, tingling, soreness, etc., these point away from ALS. ALS is a disease of the motor nerves, not the sensory nerves. There can be pain in ALS, but it is almost always well into the disease process, when the muscles can no longer hold the joints together or when immobility has caused frozen joints, bedsores, etc.
Anxiety can be a real problem that can endanger your physical health. It is what leads many folks to fearing RARE things like ALS, but it is a self-fueling fire—the more anxious you become, the more twitches you will have, the more you obsess with perceived weakness in your arm or leg or hand, the more dents you will find… and the more you will become convinced you have atrophy. If you can’t stop using the internet to diagnose your problems, or if you cannot stay away from Dr. Google, that should tell you something important about your mental health.
100% ANXIETY.
Anxiety can do a lot of weird stuff.
YOU ARE FINE!!! :)
Take a deep breath and RELAX. It's only anxiety, and anxiety, while it can be scary and mimic weird stuff, it CAN'T HARM YOU. :)
Hope this helped!!!! :)
1 Comments
I keep trying to tell myself that but after loosing my mother a year ago to terminal cancer im like hypervigalent of any issue im having physicaly and yes dr. Google spark my fears
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