Nauseated 24/7

[jillstras]

Since May of 2009 I have had 7 surgeries.  I have been in and out of the Hospital more than 15 times.  I have had part of my small bowel removed twice.  I have constant nausea daily, 24/7.  I have been to more than 7 doctors and no one can tell me what is going on. I have had blood tests, CT scans, X-rays, etc. with no avail.  I have upper abdominal pain right under my rib cage on the left side.  I pass horrible smelling gas and have horrible smelling, oily stools.  It looks like there is a layer of grease on the top of the water when I have a bowel movement.  I have been on home care IV fluids since December to keep me alive.  I have had zofran, phenergen, reglan, different muscle relaxers, pain medicines, and anxiety medications, but my nausea and vomiting do not ever go away.  I have had 2 endoscopies, 1 colonscopy, and an upper G.I. scan.  The test results have all been normal.  

I have recently started having horrible headaches sine the beginning of January and I have never had headaches before in my life.  I have had pregnancy tests and I am not pregnant.  The only thing that gives me a little relief is when I go to the ER and have phenergen injected through an IV but the nausea soon returns.  No doctor I have seen has been able to help me or find out what is wrong.  I am wondering if any of you medical professionals out there have any ideas of what this could be.  

I know my body and I know something is wrong.  I feel as though the doctors are just masking the symptoms (or trying to) but they are not finding the root problem.  I don't have a gallbladder and I had gastric bypass 6 years ago.  I continue to lose weight because I can't eat and really don't want to because it makes me sick.  I am 5'9, 25 years old, and 148lbs.

If anyone has any suggestions or helpful guidance please help!  I need to know why I am feeling this way.

[RubyWitch]

I can't begin to imagine your frustration nor the hell you pretty much endure every single day.
It's just so hard to believe, with all the incredible tools doctors have these days, that they are having such a difficult time coming up with a diagnosis for you.  
I do hope this GI doc you're waiting to see is worth the wait and will finally be able to help you. But having to wait until April while you are in this much agony just doesn't seem right.
Have you considered going to Salt Lake City to a major hospital?
I believe the one below is only about 30 miles from Highland, UT.
This hospital has been ranked very high and teaching hospitals are usually very interested in "difficult" cases, which I believe yours qualifies.
I don't mean to stick my nose into your business, I'd just like you to get the very best care available to you. Maybe you could just think about it?

University of Utah Health Care, Salt Lake City
50 North Medical Drive
Salt Lake City, UT 84132
[phone]
www.uuhsc.utah.edu
This hospital is one of nearly 5,000 that U.S.News evaluated for the latest America's Best Hospitals rankings.

I wish you the best and hope you will stay in touch with us.
You will be in our thoughts
Peace
Greenlydia

[jillstras]

Yes they have.  When I went through my colonoscopy and endoscopy and upper GI they did some blood tests as well and they don't feel as if I have Crohn's.  I'm a little frustrated because I can't get into to my GI specialist until April 27.  I even had my family prac doctor call him and the ER room that I went to on Wednesday and they still said that he is not able to get me in.  I know he is good and I know he is going to work with me so it's worth the wait, I just am so tired of feeling sick and not being able to eat.  I also hate being in pain constantly.  

I go to a pain clinic on Wednesday of this week for the first time to help me though the next little while until the GI doctor can help me.  My Family Practice Doctor said that I need some relief.  I'm just very weak, nauseated, and in pain 24/7 and I need some help.  I literally feel like I am dying.

It's frustrating because I don't feel as if this has anything to do with anxiety.  I'm not stressed, I don't have panic attacks, and I only have mild depression which is caused by my health problems.  When I feel well I am fine.  I just really pray that this doctor is worth the wait and will stick with me and really dive in and figure out what is wrong.  I'm sick of doctors trying to cover the symptoms and not cure the problem.  I need the problem cured so I won't have symptoms anymore.  

Sorry for rambling, it has been a tough weekend and I just needed someone to talk to.  I appreciate you responding to my question and asking me questions.  Trust me, everything helps and I thank you so much for caring!  Have a great Sunday  :)

[RubyWitch]

Have they ruled out Crohn's?

[nursegirl6572]

Wow!  You're so young to have gone through so much. If you don't mind my asking...and I apologize if I missed it somewhere in your post, but what was the reason for your colon resections?

I would recommend the same as others above...a visit to an Endo, and if you already have a GI specialist (which I would imagine you do), perhaps get a second opinion.

Also, have you ever been tested for Celiac Sprue?  That could explain some of your symptoms.  To me, it sounds more related to the gallbladder, and possible pancreatic issues. Also, MANY people who have had a gastric bypass unforunately run into a lifetme of GI problems.  I'm sincerely hoping that isn't the case for you, but I have seen it happen many times.

My money would be on something related to the gastric bypass, glaabladder, or your pancreas.

Very best to you...hope you get some answers soon.  Let us know!

[jillstras]

Thank you so much for understanding.  You really have no idea how much it means for someone to understand what I am going through.  I hope you have a great weekend!

[mama23babies]

Yes and I get the awful pain just like I still have a gallbladder.It helps immensely with the diarrhea too. I"ve had to go on the med a few times since having my gallbladder removed. I get extremely sick,diarrhea and vomit bile. I also get really tired and feel like total crap and it has always helped before. Questran is mainly used as a cholesterol med but binds to the bile. I hope you feel better soon. I know how awful it can be.