The last time you posted was 2008. Have things changed? I have the same problem. I have been to the rheumatologist and 3 neurologist nothing was found. I have had 2 MRIS and an EMG.
The drs I keep seeing just want to put me on drugs and send me on my way. My problem is my elbows, hands, backs of legs hurt too. Ive been checked for RA and Lupus and all the test are reporting as negative. Ive had the X-ray of my spine done yesterday. He did not release yet the results but he just wanted to give me steriods. They dont take away the pain so I refused.
I just emailed the John Hopkins Hospital to see if I can be seen there or if they have a local doctor close to my home.
I understand the feeling of being at your witts end. Im at mine...
I am in same sit. at you really, so just want to say good luck and (((HUGS))) x
I hate when doctors don't listen to and hare patients! So sorry you are in misery. My suggestion would be to change doctors. If you can, get in to a rheumatologist. They should do further diagnostic tests, beyond x-rays, to determine the cause of the problem. You may have to change doctors a few times, but keep at it until you find someone who takes an interest in your case.