treatment/ home theraphy

[Johnbaptist]

my daughter 15, having been diagnoised as having PDD/ retts at the age of 5/6 that is about 9 years back. Not having much confidence on medical facilities and / or resources ( money) we decided to keep her home and take care of her in the best manner possible. but without any medical supervision or medicine..for the last 9/10 years we are doing that, she has grown into a teenager, she has had her menstruation from age 12, has lost almost all speech over the years, except for the tantrums and shrill screams and weeping /sobbing outbursts/bouts. since the last coupleof months her tantrums and weeping/screaming takes on a new dimension when before /during the menstrual period.what should we conclude?  what can this mean?pl.help. we happen to livein Kolkata, India.

[Johnbaptist]

the problem is we  her mother, myself and her elder sister are the only care givers she has, no physician is available to her. they are too costly, incovenient and too brash. lives of poor people are not very valuable.we would be if you tell us something we could ourselves do so that her sufferings could be lessened.

[MaryannesMom]

Are you able to put her on birth control?  There are now different forms of birth control (patches, shots, pills) that can stop the menstrual cycle for many months, even years.  I would strongly urge you to look into this, even if it means contacting a physician.

[Rachel Thompson, Ph.D., BCBA]

It is not uncommon for challenging behavior to worsen in conjunction with the mentrual cycle. I recommend that you consult with your daughter's physician to detmerine if there is a medical intervention that might relieve any discomfort associated with her cycle.