Actually, I have my last test results now. I am going to a doctor in NJ because the constellation of symptoms plus my history suggests disseminated lyme disease! Haha - it took my wonderful gynecologist to suggest this when I went in for spotting that was a bit much compared to normal. She said that my cervix was not even 1/2 the thickness it should be at that point in my cycle. I was shocked. She said that it isn't able to heal itself and that the only other patient she'd seen with the same thing and my constellation of symptoms was a case of disseminated lyme. We took over an hour and a half to review my labs, talk about my history, and then her explaining why my B12, vitamin D and cervix were problematic. Most of this is because of the way the vitamins and other hormones like estrogens are being processed (or not processed). Thyroid issues are also part of the whole complex. She truly made my day simply by talking to me. What really surprised me was that I was an 'emergency' squeeze in at the office and she took SO MUCH TIME with me. She also told me that if they diagnosed it as lyme, she wouldn't mind being my primary care physician here.
My Thyroid Panel
TSH f 2.470 mcIU/mL
TBI 1.4 TBI UNITS (this is only slightly high and I don't even know what it is)
T4 9.3 mcg/dL
T3 Total 161 ng/dL
FT4I 6.6 mcg/dL
She also said that she was up-ing my B12 to once a week! I was so happy and it has gven me some extra energy! I was so happy for the entire day. Of course I over did it and have been almost comatose since wednesday! :(
By the way - I haven't gained or lost any weight. Completely maintaining. Even though I'm not eating nearly as much as I was. That's why the GI doc said "you certainly don't have a malabsorption problem because you are overweight.". It really angered me. I weigh 151 lbs at 5'1" but anyone that looks at me thinks I'm about 130 because of where I carry it. I also have (had) high muscle mass from 15 years of gymnastics.
I too am a thyroid sufferer and let me tell you when I first read your post I immediatly thought of the thyroid. I have many of the same symptoms you have. I went undiagnosed for 7 years because there is such a controversy of what is considered "normal" for a thyroid. If you do not kow your resutls, I would encourage you to get a copy. I was told for a LONG time that mine were normal when in turn most doctors don't do the appropriate tests and don't know the accruate "normal" range. If and when you get a copy of your results I would be happy to give you my advice. Good luck!
Hi.
On reading this post i automatically thought thyroid?
Then you said your THI was a little high, what is a THI, as i am a thyroid sufferer and have never heard of a THI, do you mean TSH?
Have you had your adrenals glands checked?
May i ask have you either gained or lost any weight?
Have you had an ANA or DNA antibody blood test done?
Low vitamin D and B12 Deficiency can go along with thyroid disease.
Also have you had any thyroid antibody blood tests?
Sorry to ask a lot of questions its just im trying to get a better picture, just so i can help you.
Good luck
Nicola
Yes, twice! My thyroid results (complete panel) came back normal except my THI was one tenth of a point high. My doctor said it is just fine!
I had to go back to my rheumatologist because I started having muscle spasms that pulled so hard they felt as if they were pulling out my bones from the joints. I now can't even hang my arms because they feel like they are pulling. The spasms have gotten so bad that when I turn my neck I see black spots so big they look like bugs.
He did tell me that my Vitamin D was low and that I had osteoarthritis in my joints. But nothing more! I am ready to give up and just live like this!
Has your doctor done a complete Thyroid panel? I only ask because a lot of the symptoms you describe a friend of mine had.
Unfortunately, I can't help you, but I can understand where you are completely. I'm kind of in a similar situation. It is *really* frustrating when they assume that having a mental illness means you can't have anything else, too.