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Any ideas as to what could be the cause?

I'm a 24yo female. Mother of two. No major health hx. One surgery: C-section; 2013 no complications. Until about 5 mos ago without known provocation. I have had the following symptoms daily and they're worsening: SOB, chest pain, SVT- constant pulse of 110+, random shocks of pain in extremities, profuse sweating occasional red rashes on legs (circular, rough, do not blanch), red flushing in hands, waking during sleep with racing heart, corneal ulcer and upper back pain (adjacent to pain in chest).
I have not had any changes in diet, exercise or lifestyle.
I had rheum tests done in May2017 with a positive ANA 1:80, speckled. I was symptomatic at the time. I have since visited with a rheumatologist and had labs redrawn, showing negative ANA results. I have also had several EKGs performed, labs drawn, had an ECG, chest CT, liver US and visited with a pulmonologist.
EKGs have only confirmed SVT.
ECG only revealed mild mitral valve prolapse with insignificant regurgitation as was as an RVSP of 26.
Labs only showed liver AST of 71 (only on recent testing).
Liver US was unremarkable.
Just getting started with pulm to monitor the elevated RVSP. (had a home pulse ox last night woke up with my heart rate at 122... sleeping!).
I know it is NOT costochondritis and anxiety, as the ER wanted to dx me with at onset. So what are your thoughts? what is going on with my body?
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Avatar universal
I had most of the symptoms you are describing after the birth of my first child.  I suffered with it for over 4 years as it got worse and worse.  I was finally diagnosed with both a Thoracic Aortic Aneurysm and a Supra Renal Aortic Aneurysm.   I had a dacron tube graft repair on the Thoracic aneurysm done right after it was diagnosed by CAT scan because it was  starting to dissect.   The Supra Renal Aneurysm was repaired 3 years later.  
  But what is important here is that not only do I NOT have an autoimmune disease, was that I was only 23 years old when I was diagnosed; and that was after suffering with the increasingly worse symptoms and pain -just like you have described- for over 4 years.
  I feel that I was not properly diagnosed for so long because I was young and because I was a woman.  Since I had no history of any medical problems prior to the onset of your symptoms, I was dismissed as being neurotic, hysterical, or just plain being a liar for attention and/or pain pills.  
   What I am telling you is to be your own advocate.  Be consistant, concise, and assertive as hell in getting a doctor to LISTEN TO YOU so they will actually try to find out what is wrong with you.  I almost died because so many doctors would not listen to me.  
   I am now 47 years old, I am in pretty good health, and I have had my dacron graft repairs for over 25 years and they are unchanged.   Maybe you have a Thoracic Aortic Aneurysm?  They can occur in people in their early 20's.  I'm living proof of that.  My upper back pain was under my left shoulder blade and would not go away no matter what I did until it would just ease by itself.  Until it came back again.  It got increasingly worse -along with the other symptoms- and it was only at the last possible moment that they finally found out why.  If I was you, I would insist on a CAT scan, an MRI, or both.  
  Just because it is rare and your doctor(s) doesn't even think you could possibly have it, doesn't mean you don't.   It is up to YOU to make sure it is diagnosed and treated.  Because if you have it and it isn't, then it will only be found by a pathologist when you are deceased.
  
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1756321 tn?1547095325
Excerpt from Family Practice Notebook - ANA Staining Pattern...

"Speckled Pattern

Most common, least specific

Disorders:
Systemic Lupus Erythematosus
Mixed Connective Tissue Disease
Scleroderma
Sjogren's Syndrome

Further evaluation:
Smith Antibody (Anti-Smith)
Ribonucleoprotein Antibody (Anti-RNP)
Scl-70 kD kinetochore (Anti-Topoisomerase I)
Anti-La (Anti-SSB)"
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