Has anyone suffer from orbital igg4-related disease?

[ELiza1964]

Inflammation on the eyes. Small Lump on top of my Lacrimal duct. Swollen around the eyes.
Watery and mild proptosis. In certain angles I suffer from double vision and Pressure in my head. I have hyperthyroidism and Rheumatoid Arthritis. Doctors say I have thyroid eye disease but after intense research I  believe I have orbital igg4-related disease. Doctors dont Know mch!
Can anyone relate

[TheLightSeeker]

I can't relate, since I don't have anything serious at all with my health, however, I can say with certainty that you need a diagnostic biopsy to rule this in or out.
Ref: IgG4-related ophthalmic disease
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4314568/

And because you already have a diagnosis of Hyperthyroidism, your doctors are pointing to Graves’ Ophthalmopathy (much more prevalent than IgG4 ROD) , where  the overactive thyroid affects the area surrounding eyes and may cause inflammation, redness, achiness, pink eye, eyelid retraction and bulging eyes, etc.

Best wishes,
Niko