Suggestion:
My mother had her biopsy sent to the Mayo Clinic for a second opinion. It cost her a $45 fee and she received a report on it.
You may want to look into this.
Sorry that turned out such a waste! Is your doc still going to treat you for Sjogren's? Can you get a copy of the actual lip biopsy report? If it was done right, it should either have a rating 1-4 or a listing of how many clusters of lymphocytes of a certain size that were seen. Although, if your doc is going to start treatment for Sjogren's, it might not be worth pursuing.
OK, I went for the biopsy. It came back non-diagnostic. I am sooooo glad I spent all that time, money and energy to find that out. Imagine not knowing! And to add insult to injury, the ENT made me pay before I even spoke to anyone. The receptionist asked my name and the next words out of her mouth were "that will be $117.00". For WHAT! I haven't even had my vitals taken! First time I have EVER been charged before my visit.
When I went for my lip biopsy the doctor who was to do it tried to talk me into the parotid biopsy, saying it would be more conclusive. I declined and asked him to do as my rheumy had ordered and it was positive. After reading about the parotid biopsy I was happy I insisted on the lip.
I had mine well over a year ago and I do have a partially numb bottom lip. It is really of little concern to me; I just ignore it like my other paresthesias.
Good luck in your decision, whichever you choose. Hope you get some relief soon!
Wanna :o)
If you've got a decent doctor, it's not hard to get the right spot. They just need to know that a salivary gland looks different from a fat deposit, or in my case, a nerve. I had a Fellow learning how to do it, and yes, she grabbed a nerve first. Yes, I had some tingling and numbness after, but it's an area about the size of a pencil eraser, and it's almost back to normal. The good thing about a lip biopsy is they can see how much the lymphocytes have infiltrated, rather than just how much antibody you have circulating in your blood. It's probably not necessary for a diagnosis at this point, though.