I know that many patients who have Sjogren's syndrome do better with a gluten free diet. My mother was recently diagnosed with Sjogren's and was advised by her physician to quit eating wheat.
hi. I'm new to the group and am under the Fibomyalgia/cfs community. I do have lupus/raynauds, ans sjogren's syndrome as well, Iused to think that thesjogren's was just dry eyes, nose and mouth thats what my dr. had me thinking, but I'm reading so much more about it and finding out ther is more to it .I am 36 and just finally got some of these diagnosis after being poked, proded, and sent to evewry other kind of specialist there is to rule out other things. I would love to hear some feedback on other peoples experiences with sjogren's. I have been in a fare for about 5 weeks and its really hard to deal with every thing all at once the muscle pain jointpain, swelling, eyes so dry and irritated I want to claw them. Does any body else have problems with your skin being so dry no matter how much lotion you use? especially my feet .
Did the physician say why wheat should not be included in a diet? I have recently been diagnosed with SS, after years of infusions, steroids and chemo for other things, and am just learning about what SS is. I have severe peripheral neuropathy, both feet, legs and V bad right hand. I always thought the dryness things was part of aging, how wrong can one be! Does anyone else have the PN and how do you cope with it?
Yes I find that no matter how much moisteriser I use it does no good whatever.
I have problems with dry skin from Sjogren's and have recently found (just this last week) a great lotion that helps tremendously. It's Aveeno Overnight Intense Relief. I put it on my face, legs and elbows every night and it usually works. My face is the most dry, so even with the lotion it is still scratchy. But it's worth a try. I love it. Good luck!
I have sjogrens syndrome. I find that if I use a lotion called amlactin every day my skin is not so dry. My doctor has prescribed restasis for my dry eyes. It is wonderful. I have peripheral neuropathy from some of the drugs I have taken over the year. I cope by keeping the skin from getting dry, keeping the sheets and blankets from resting on my feet, stress management (when I am stressed the neuropathy is worse), sometimes pain pills. I eliminated gluten from my diet due to having bloating, chronic frequent bowel movements. I talked to my doctor after the fact and she said it couldn't hurt. I also have inflammatory arthritis associated with my sjogrens. The gluten free diet is the best thing I've done for the belly and the inflammatory arthritis.
Heavy Metals, Candida and Parasites could be the root of all your problems. If you could heal these problems, would you want to? I did! Read this site here and then look for some of my other posts on heavy metals. And no, I am not selling anything, I am just a person who has healed herself. Do your own reseach and draw your own conclusions. http://www.susansolomonmd.com/celiac_disease_and_gluten_intolerance.html
Well, I have Sjogrens, and so many other AI problems (as most of us seem to) that pretty much everything in my body is inflamed from time to time. I test negative for Celiac disease. At my wits end, I was referred to a nutritionist who recommended that based on my symptoms, I should be on a gluten-free diet. What a MIRACLE!!! I now have 3x more energy, clearer thinking, less pain, and fewer GI problems. It's been an absolute miracle for me. And, really, not that hard to do once you get adjusted.
I'm not surprised to read your entry. I know that MANY people who are chronically ill, including Chronic Fatigue Syndrome sufferers and people with autism do better on a gluten free diet.
I'm happy that you are feeling better !
I have Celiac + am Dairy Intolerant since infancy (so am on a gluten + dairy free diet -- otherwise it's projectile vomiting, diarrhea, and intestinal swelling) -- also been Dx'd with Sjogren's and Hashimoto's autoimmune thyroiditis. Put 3+ types of autoimmune diseases together (one needs to be a thyroid problem) and they label it Autoimmune Syndrome. There are 3 types of AS (I got labeled with type III). So many of the symptoms overlap from one autoimmune disease to the another that it is hard to tell where one begins and the other one starts. Anyway, they thought for a while that I had the beginnings of rheumatoid arthritis with joint pain and some episodes of swelling. After a year and a half of messing around with one test and specialist after another, it was discovered that I am mildly hypothyroid. At the time of the dx I was taking 1-2 Celebrex a day + Tylenol frequently on top of it just to keep the joint pain under control. After the thyroid problem was discovered (about 6 months ago now), I started a low dose of thyroid hormone replacement, with a very dramatic result....after only 3 days, there was a huge difference in the continual level of deep, dull joint achiness I had been experiencing. After that initial dramatic improvement on day 3, any mild residual achiness has continued to lessen over time. I quit taking the Celebrex immediately, and very seldom need to take Tylenol now. I told my doctor that he's a genius --although he admits that he didn't originally think it could really all be caused by a thyroid problem. Well, the thyroid medication has made such a dramatic difference for me (just like someone turned off the pain switch) -- that it is hard to think it could be anything else. So, if for any reason you think you may have a thyroid problem, ask for the whole thyroid panel: TSH, free T4, free T3, and antibody blood tests for autoimmune thyroiditis.
A gluten-free diet will not change your Sjogren's symptoms. I do get a reaction from eating straight wheat. However, I do not get a reaction from eating in small quantities.
A healthy diet is good for everyone and eating everything in moderation. Do not fool yourself that you are going to stop Sjogren's with diet. You will suffer and do long term damage that is irreversible.
Please see your doctor to get diagnosed first of all as other illnesses can mimic and not be Sjogren's. Get on medication to improve moisture--see all the doctors that you need to that your doctor advises--which is several I might add. I find stress management is a huge factor---emotional mental state of mind---depression plays a role as well--even hard core diets when you limit your calories too much can trigger it.
Live a long life and get your weight down, exercise even walking helps, take your medication, drink your 8 glasses of water a day, limit alcohol, coffee, eat everything in moderation which is mostly all nutritious meals and be try to be happy and move on as there is no cure. It is quite devastating but it can be managed. We have good days and bad days. With much love for those suffering, please try to take care of yourself .....this is so painful to go through when you don't. I am going to see a Acupuncturist for some therapy to see how that goes.
I have Hashimoto's, Sjogrens, Celiac, and Lupus autoimmunes diseases