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Avatar universal

Does anyone have an idea what might be wrong with me?

Since I was 4, my parents and I have been fighting my illnesses.  First, I had an appendectimy, then was diagnosed with severe reflux.  Then at 12, had tonsilectomy, and at 14, sinus surgery.  At 17, gallbladder surgery, and diagnosed with a "lazy stomach".  Also, treated with allergy shots for a wide variety of allergins, and now test negative for those.  I began seeing a pedaitric rheumatologist at 15 for severe joint pain, fatigue, and constant infection.  Began methotraxate treatments due to high RF factor and SED rate, but had to quit them.  He and other dr's leaned toward lupus, but ANA came back negative the once I have had it.  Had my first child at 20, then another last year.  I am constantly sick with an infection.  Will take rounds of antibiotics and steriods and then be sick again in another couple of weeks.  Have had 11 infections in the past 12 months.  I saw my rheumatologist last month and he did testing again, I go back Monday to get results.  He says I have fibromylagia, but is not sure about everything else.  I stay extremely tired, constantly sick, have IBS, often get "blisters" on the joints of fingers, elbows, and knees.  I also have MVP and dysautonmia.  I bruise easily, and have constant joint pain.  Often have extreme leg aches at night that are very painful.  I have been fighting this for years, and I am looking for an answer.  I want to be the best wife and mother I can, and at this rate, I stay sick so much it is not possible!!  Any ideas please give me a direction to where to go.  I have no family history due to the fact I was adopted at 3 months.  Only thing I do know is I had a paternal grandfather with Leukemia.  Thanks!!
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Avatar universal

The symptoms of Lyme disease and CFIDS are so similiar. The treatment I'm actually doing for CFIDS is also treating people w/ lyme disease, fibromyalgia and autoimmune conditions. At least I know I'm covered... LOL !
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Avatar universal
please read about LYMES disease!!!! I cant believe how many people are on here sick that are classic lyme. please go read what I posted under high ana possible lupus! but agian u have classic lyme and you can have it for years. I have IST which is like pots you get this from lyme aswell! along with all the other things you have like you gallbladder and what not and you would get worse becuase of the steriods! or better then worse.  please go read what I wrote and look into this I know several people that were bit as kids and didnt find out that it was from a tick bite even when they dont remeber it, I didnt remeber mine doesnt mean anything and the lyme test at your docs is 60% wrong!
sounds like classice lyme!
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Avatar universal

P.S. --- Something I almost forgot... has your physician ruled out Celiac Disease ? Some people who have Celiac Disease get clusters of small blisters... usually on their elbows, knees, buttocks, back of the head and the lower back. The condition is called dermatitis herpetiformis. Celiac Disease can often go along with other autoimmune health conditions.
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Avatar universal

It sounds more like CFIDS and dysautonomia  (POTS -- postural orthostatic tachycardia syndrome) is common in patients who have CFIDS.

If you would like, I can send you some very helpful links because many physicians do not know much about CFIDS and there are many lab tests that you will need to rule out other possibilities, including immunodeficiencies.
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