amyloidosis

[recovie]

I was recently diagnosed with amyloidosis after a skin biopsy with a dermatologist. I was referred to a rhuematologist for more tests. In the meantime I of course researched and discovered lichen amyloidosis which was not even suggested by any of the three MDs. When I suggested this they all were vague. The skin biopsy was clearly positive-could this have ruled out the lichen type? I am not fragie and can handle bad news but I do want to be prepared with info for my next  appointment. My priuitis and tingling limited to my arms. Please let me know how they will differentiate, Healthcare as it is there is no doctor I can go to with which I have a perrsonal relationship,

[ehlegirl]

Hi there,
I have AL Amyloidosis, diagnosed last Dec. and currently asymptomatic with no treatment at this time.
I URGE you to go to amyloidosis.org and also become a member of the best support groups you can imagine at www.amyloidosissupport.com
Be VERY careful what you read on the internet! These two sites are state of the art, up to date and incredibly valuable.

All my best to you.

[Dr. Kokil Mathur]

Hi!
Skin manifestations of amyloidosis can be  apart of systemic amyloidosis or it can be a localized cutaneous amyloidosis. This is differentiated by the presence of systemic symptoms in the former variant such as numbness, tingling, fatigue, breathlessness, weight loss etc. Since you have itchy lesions in the arms, it could be the localized variant. However, presence of tingling does raise the suspicion of a systemic component. Localized amyloidosis of skin can be lichen type (most common), nodular, macular etc and the differentiation is based on their looks and histology. Please discuss this in detail with a skin specialist.
Take care!