I'm sorry to hear about everything you've been through. Maybe you would find it helpful to look at Horowitz book, "Why Can't I get Better" to help sort through symptoms and treatment options.
Thank you I will find the book and start reading.
Chronic Lyme can definitely cause secondary dysautonomia. The way to improve the dysautonomia is to treat the Lyme, though symptomatic treatments for the individual symptoms of dysautonomia may be helpful INSOFAR AS THEY DON'T CAUSE ISSUES WITH THE LYME AND ANY LYME CONNECTIONS SUCH AS BARTONELLA.
I have a close friend with chronic Lyme and dysautonomia who sees a Lyme doc in your area. I will ask for her docs info and private message it to you.
I would also be interested in receiving info. on doctors who are knowledgable about Dysautonomia and Lyme.
The doctor I have info on is in the Northern VA/DC area. I will send you that doc's info via PM. Unfortunately I don't have information on any LLMDs closer to you. *Most* LLMDs are pretty secretive about their practice because there is a lot of politics and stigma about chronic lyme disease, and crazy as it may sound, in some areas doctors can actually lose their license for treating chronic lyme. If you have lyme, you're probably aware of that situation so I'm probably not telling you anything new. If you aren't aware of that mess, let me know and I can refer you to some educational information.