Heat intolerance, fatique, no energy

[js59]

Hello, I had not been diagnosed yet. I saw some doctors but they don't know why I have those symptoms. Basic blood work came back negative. I have a huge heat intolerance, with temp over 71 F, can not take warm bath, can not eat anything warm,I have hard time to concentrate and communicate, abdominal pain, pain in left leg and hip.  Soon as the heat will hit me my face and fingers will be like on fire. I am having the same symptoms with emotional stress. When i have stressful situation  immediately my face is like on fire, I am having very dry heat in my face(it is coming from inside me, my breath is hot) and color of my face is deadly white. I think that something is happening with blood float at that moment, almost like blood is not coming to my face. The same time my fingers will get very swollen, fluffy, red and hot (I think the blood from face goes to fingers). When this happen - immediately I have pressure in my head (feel like something cracked in head), I get very fatigue and tired, have no energy. I have to lay down. I can not eat or drink anything warm, If I have only one sip of anything warm I get big sharp pain in my stomach/esophagus all my body will shake, huge heat in face and fingers, extremely fatigue, totally drained, sick, I have to lay down. I am not eating warm food for 8 years, I can not be outside in summer time, I can not cook (heat from stove makes me sick, even steam from warm plate would make me sick). Can anybody help me, please?

[tonyad]

  Hey there,
Sorry you could not get up what you needed... I tell you what, Tomorrow I will go on there and get the ones that are pertenant (sp) to what you are looking for then send you those specific links......Sound Good??  :)

Hope you had a good day,
~Tonya

[js59]

Hi Tonya, thank you for this web side. I am very confused how to read it. It has so many topics and every time I click on one of the "blue" topic the same topic is repeating and showing even more ...so I am afraid I will not understand this. Some other web side are just so much easier.... I was doing many researches on my own in the past and every time I tried to go to WD side I just could not figured it out. I can say that I am pretty intelligent :):):) ( at least I think so), but I just have hard time with this one........?????I was there all evening, but i could not figured it out...sorry...
Js

[tonyad]

     Well, you certainly have a long hx of miserable stuff going on  :(
Of course as you know that when you have a herpes Outbreak you the actual nerves to the affected area are being damaged. this would explain the strange sensations in the previous areas of where you had previous outbreaks....Makes sense so far?  Lol

     Check out this link and tell me what you think. See if it helps to answer or understand some of your questions:

   http://symptoms.wrongdiagnosis.com/cosymptoms/genital-sores/heat-intolerance-slist3.htm

Let me know what you think and ask something if you need.
~Tonya

[js59]

Oh no, that bad hm?
Don't worry, one day will not make any different to me....I am happy that you will be giving me some advice. Any.......
I hope you will have better day tomorrow...:):) take it easy....
Js

[tonyad]

  Hey there :)  i have not forhotten about you...i am just having an "BAD" day today
so I will get with you tomorrow......As my brain is Mush tonight......

hope your weekend was good,
~Tonya

[js59]

Hello Tonya,
Wow - I can not believe how quick was your response. Thank you so much. Yes you are absolutely right, it is very hard to deal with this.I adjusted my life to this condition and I am trying to live with it the best as I can.
First at all I need to tell you that all my problem have start 12 years ago when I had been infected by genital herpes virus, not treated for 4 month.Those 4 month was the worst 4 month of my life. I had a huge pain and heat in my vaginal area and pelvic floor, my genitals was like on fire but most of everything I did not know what is wrong with me and I was very afraid, very embarrassed, guilty and very angry. I was not educated about this disease and It was a big trauma,shock to me. I was totally frustrated . I had such a pain but doctor was telling me that is nothing wrong with me, maybe it is an east infection. He was giving me a high dosage of Duflecan and some other medicine,  but nothing helped.  After 4 month i changed GY Dr.., new doctor have found inside my vagina (near to anus on left side) little blister, took biopsy  and yes it was herpes. Since that I live with big pain in my genital area, I have open cuts there where the herpes was (almost looks like paper cuts) very painful. I had a huge heat in my genital,tail bone and pelvic for another 12 month, I still have the heat there but less. All my left side of hip, sitting area - sitting bone, thigh is always in pain, the one spot where I had the herpes I fill like there is something stack, bloke, very tight. It is very painful even for the light touch. Through the years I feel like the heat sensitivity has spread in to other parts of my body.
I visited pain clinic last year and I was diagnosed with postherpetic neuralgia. I saw endocrinologist, he did some blood work (not sure what kind)which came back negative, he also did adrenal test-negative. I had blood work done for lupus- negative. I had MRI done (spine cord) about 7 years ago and it was good. And I think this is it. I don't think I had any more tests done.
I think I have an anxiety, maybe panic disorder? I am not sure.... I have a huge anxiety speaking.  English is my second language so every time I speak I have anxiety. I can not control that. I always have to focus what am I saying, I can not just talk naturally. Sometimes I am so nervous that I am making mistakes what I am saying, my words are coming wrong.This is giving me a huge stress every day. When this happen I feel something like crack in my head, my face is immediately on fire, my cheeks are so dried when i touch them it hurts,I get totally sick, fatigue, no energy, pretty much I feel like I just had some surgery done. My face look at that moment like a death person.
I think this is all. Now you know my story and I am pretty sure that your head is spinning now :):)
Please accept my apology for the grammar and spelling mistakes.

Have a good night and happy Mothers Day to you (and or to your mother).

JS