How did your POTS symptoms begin?

[craigory1962]

Out of curiosity, and need for comparison, how did those of you with POTS symptoms begin. Also, has there been any change since the symptoms started? I also would like to say thanks for the help already recieved.

[CHRISTYDRAKE]

For my son, it all started with frequent stomachaches(5th grade).  Then stomachaches/vomiting/nausea, then stomachaches/vomiting/nausea/dizziness/migraines.  Over 2.5 years it progressively got worse.  His wasn't one of those "fine one day then woke up sick and never got better."

Many of his symptoms are under control with medications, but some are just not going away(mainly nausea).  He is occassionally dizzy, not too bad.  His resting heart rate is usually high and so is is bp.  When this all started his resting heart rate was low(50s) and his bp was also low(90/50).  We haven't seen those numbers in a long time.

He used to get hot spells, have weak (licorice) legs, migraines, abdominal pain.  These for the most part are gone.

[lumterps]

Mine started with feeling like I was gonna pass out. I never have (knock on wood). I stayed dizzy all the time but I'm not sure if at that point it was from the POTS or from anxiety?! I thought this all stemmed from hitting my head so I never payed attention to my heart rate. Then I started getting palpatations and ALL I did was pay attention to my heart rate. I only had a couple of days with a HR in the 130's before I had my tilt table. (i had already been to every other MD there is....so made this choice an easy one!) My dx was given after 5min of being upright. I got on meds and was okay for awhile. My dizzy spells seemed to have hit hard core these last 2 weeks. I'm praying for a return to my life a couple of weeks ago.
I have noticed that everyone's symptoms are different...but it helps A LOT to hear everyone's story!

Good Luck! Hope your feeling better!