New Sympton

[acesew]

Hey guys.  Hope everyone is doing better now or on the road to it.  I have not had too many good days in a long while.... I had a new symptom the other day.  When I got up the other morning, I had a real hard time with my legs.  I had the feeling that the muscles were very very tired and as the day went on, I had the feeling that I had no control or actual feeling in parts of them.  This only happened for the one day and it was all I could do to walk (I went to work, probably should not have done that).  Any ideas?????  

Also, I have been reading some of the posts and see several of you have stomach problems.  I do not have as severe problems as y'all do.  My main problem is a constipated feeling.  I have gotten to where I have a lose of appetite after lunch.  My appetite is  normal until lunch.  Just wondering about that.  It doesn't compare with all of you.  It may also be because I am in some of the earlier stages on some of this.

Thanks all.

[Weney3777]

I have a lot of problems with my legs, also. Sometimes it feels as if the muscles are cramping. Sometimes as if the bones hurt. I thought it had something to do with blood pooling, but as it turns out, that would create pain in one'd neck and shoulders instead.

For the last 2 months, I pushed(even forced) myself to walk. It started around the block and eventually, I am jogging about 1/2 mile and walking 1-2 miles a day. My legs still hurt and ache, but I feel better overall. If you don't feel like you CAN walk, then it's probably not a good idea. But, did you take your blood pressure at this time? Have you been drinking enough fluids and/or electrolytes? If you do have dysautonomia, it's not a good idea to take a hot bath, but a luke warm one might help for your legs. Potassium also helps for leg cramps. You may want to try Hyland's Restful Legs.

I always have constipation. Bloated feeling, too. I guess, they go along with eachother. My doctors say I have GERD and IBS. These are common symptoms. I take alot of colace. Was even prescribed amitiza. Though, nothing really helps, but it's worth a try.
When I am very costipated, my appetite is supressed, just because you are so full already. If it starts to cause pain, you can go to the hospital for a CT scan of the abdomin. That's what I did, and they discovered my bowels were absolutely full! If you really haven't gone for a week or more, then try magnesium citrate. It works.

Hop I could help.

[AireScottie]

I can't feel my legs at times.  You can literally poke me and I won't feel it.  My dysautonomia (POTS, OI, gastroparesis) are a result of a type of peripheral neuropathy which also affects sensory and motor nerves.  Here's the MedHelp page to read and see if you can relate:
http://www.medhelp.org/medical-information/show/74

[CHRISTYDRAKE]

My son describes his legs as "twizzlers".  Sometimes he can barely stand, like they are licorice.

[acesew]

I do a lot of walking in my line of work.  I will actually at times try to "power walk", especially when we are slow and I have nothing to do.  I try to constantly drink something.  I crave water alot.  I will try some of the tips y'all gave me.  
Aire,  I still had some feeling.  It is actually kind of hard to explain.  I just know it was very hard to walk.  I agree with Christy's son on the "twizzlers" feeling.  It is like you really have no control of your legs.


I go to the doctor tomorrow.  Will let y'all know what happens.  Thanks

[halbashes]

Have you ever tried wearing compression stockings?  I'm not certain how helpful they would be to the condition you describe, but it may be something to try.

[acesew]

I may try those.  Have not yet.  I am having some more problems with my legs today so I may need to get them sooner rather than later.

[mabelanne]

After walking about 30 feet my legs would just not hold me up.  I had 5 trips to ER's before PAF was diagnosed. (Since then I just lie still until the dizziness passes and I can sit up enough to drink a pint of something.)
Also had a loss of appetite and lost weight quickly.  Diagnosis: gastroparesis.  Many with this condition have severe constipation.  And also have PAF.
Leg problem was low circulating norepinephrine,  which was a problem after I had been sitting for a while.
Just a thought.