Hi, I'm new here. I'm 25, have 2 kids and wonderful supportive husband and way to may weird medical issues.
I've been having symptoms for a few years but brushed them off as normal and me being a wimp or I would go to my dr and nothing g would seem abnormal and I never pursued further testing past regular blood work ect. Over the last few months things have been alot worse though and since my surgery last year my deductible is met and I can afford more testing.
I had a full endocrine workup that was normal so my dr suggested is see a cardiologist for my palpatations, chronic dizziness/light headedness, occasional syncope and extreme and chronic fatigue.
my symptoms are
lightheaded while upright
Chronic fatigue (worse after busy days lots of standing ect.)
PVCs (over 9,000 on 48 hour monitor)
racing heart feeling
feeling of adrenaline in chest
chest pain/tightness when standing
passing out (only happened 4 times in 4 years all after standing or dehydration)
feet turn dark red/purple when I stand for a long time, feels like they will pop.
Brain fog/ trouble concentrating/zoning out
Muscle pain/ feeling weak after standing
hair falling out
Rashes/dry skin spots
Cold hands and feet or burning feet (either extreme rarely in the middle)
Low vitamin D
If I go grocery shopping I will feel like I've gone on a run, standing in line makes me feel like passing out, it's one of the worst things I can do.
Showering is also horrible, my feel are swollen with blood by the end and I just want to lay down I'm so tired and my heart just feels like it's going beat right out of me.
I had a tilt table done and the doctor thinks I have vasovagal syncope. That may explain the passing out but not why i am always dizzy and fatigued. I never passed out on the TTT, my BP didn't even drop until they gave me nitroglycerin. In fact it went up along with my heart rate.
My first 4 supine BP and HR were
129/88 96, 131/86 74, 126/85 85, 134/87 81
When tilted the first 11 minutes went as follows, they recorded hr and BP every minute:
147/4 102, 146/105 93, 144/95 101, 129/88 104, 128/90 103, 135/93 106, 136/78 98, 134/75 107, 129/80 98, 129/75 115.
Before the nitroglycerin my heart rate got to 115 no lower than 93 . With nitroglycerin it got to 152 with bp 109/60.
How does vasovagal syncope explain everything else. Everything I've read about POTS symptoms sounds dead on for me. I've been struggling for so long and just want to feel better. I have a second opinion but they can't get me in until July. Does this seem like POTS or am I barking up the wrong tree?