16yrs ago, I had an emergency c-section. When I woke up from the anesthesia, I was paralyzed. I could feel the breathing tube down my throat but couldn’t move at all. The hospital told me it was because I have an acetylcholinesterase deficiency. But no one told me anything about it and I’ve had trouble finding much information online. Most of the time, pseudocholinesterase deficiency comes up in my search results when I try to look it up.
I’ve recently started seeing a new doctor and brought it up to him. He didn’t really know about it and got on his laptop at my last visit. After a minute or 2, he said since I woke up paralyzed after surgery, I have pseudocholinesterase deficiency and put that on my medical record. Now I’m confused. I read somewhere recently that acetylcholinesterase deficiency can affect your mood, memory and muscle function. Those have been complaints I’ve had for as long as I can remember. My memory is awful most of the time, and my body always feels like I’ve been hit by a truck, especially my legs (which I probably use more than anything). Doctor decided to order some blood tests. Thyroid, sugar, vitamin d, complete work up. Everything came back ok except my cholesterol is high. So now he doesn’t seem interested in pursuing it further.
I’ve decided to see if there’s maybe some supplements I can take or certain foods I should eat more of that could help with the deficiency but what I’m finding, websites are saying the supplements are inhibitors of acetylcholine, yet they claim to improve the symptoms I’m experiencing. I’m confused because why would I want an inhibitor if I’m lacking the enzyme in the first place? Unless I’m confused about how the acetylcholinesterase works with choline and acetylcholine? And when the nurses told me after my surgery I had acetylcholinesterase deficiency but this new doctor says pseudocholinesterase deficiency (even though he had to look it up but didn’t spend more than a minute or 2 on it). So I don’t know 100% which deficiency I have now. I’m not sure where else to get information to help me understand it or what I can do to improve my symptoms. I’ve had another doctor in the past tell me all I need to worry about is to alert anesthesia to the deficiency if I have any surgeries. Can anyone help?