I had Cushing's and know a lot of people with it. One test is not enough to tell you yes or no. There are guidelines out there that say a minimum of 3 different tests - but under that I would never have been diagnosed. It does give the out of *more of clinical suspicion* but few docs will think to go that far as they don't have the training to know what the syndrome entails.
Your symptoms are consistent - so they should look into it. Cortisol can effect they thyroid (making it low) and cause more symptoms as well. BTW a neuro is not a treating doc for pituitary - you need an endo or a neuro-endo. The neuro endo will only usually take you on once something is established- such as the lesion is seen on the pituitary or tests or abnormal but that is your best bet (although you still run into duds).
My neuro looked at me MRI today and couldn't see anything,
Yeah well my neuro does not know Cushing's from a daisy - and a lot of radiologists miss the lesions (and they can fall between the slices as well!). So, even a clean MRI means little - the tests mean more and they have to be done correctly. Weird, my neuro won't even read a MRI - I showed him my lesion. Did you get a dynamic pituitary MRI?
Are all your blood testing being done at 8am fasting? ACTH chilled, spun and frozen promptly? Is he doing ancillary testing to see other hormones? Hormone testing is a biotch - not so easy and I was held back on diagnosis from test timing and lab handling... so it is important to know not only the right tests but HOW to test.
well I have been to endo's and have numerous tests run by my primary.
I give up, maybe in the past 4 years I did suddenly get lazy and eating more without realizing it. Just seemed so sudden and my stomach is HUGE! I never gained weight in the belly before, mu weight usually went to the butt and thighs,
I never been heavy in my life, bur I am getting older I suppose, maybe my metabolism is slowing down but it seems to be slowing down rather quick.
I have body aches, vision changes, dry skin and hair, dry eyes, feel bloated all the time, getting FAT actually no I am now already Fat.
I have exhausted all options for doctors, they just pat me on the back and say I am female, old and get over it. so I give up. But dieting is not working.
Well I am in the Denver area, if you know of any here message me, otherwise I am done, I keep spending money to have doctors tell me I am old and fat.