Wonka- glad to hear your tumor came out and all is well. I wish you well in your recovery.
Thelania and bigdenny, so sorry to hear your stories. If you would like to post more please do so in a new thread.
I'm glad that it sounds so good for you. My tumor ruptured in 2010 when i was 56, and left me disabled. I hope all works ooutfor you.
I'm glad that it sounds so good for you. My tumor ruptured in 2010 when i was 56, and left me disabled. I hope all works ooutfor you.
Im glad to hear everything went well. My husband had exactly the same problems and also had surgery. He did not recover after surgery and remains in a coma since October. God Bless you!
Just for an update for anyone who wanders here in a similar situation, I had my tumor removed yesterday, and the surgeon believes he got it all. My endocrinologist told me my pituitary is responding very well, that my tumor does not appear to have been secreting anything, and my hormone levels are returning to good ranges already. He believes my hormone problems were essentially "mechanical" from the pressure the tumor was placing on the gland, and predicts my pituitary will price health and fully functional. As a tip, igf1-3 levels, alone do not determine anything. Post surgery, I've got some on and off headaches based on my movement and congestion, but otherwise feel great. I feel grateful for my medical team, and definitely recommend searching until you feel confident. I have heard about a relative in a similar situation whose surgeon removed the whole gland once he got in there, and she was a kid. Make sure you know who you're working with!
It may be that the tumor is large enough to make hormone reading crazy and the tumor itself is not hormone secreting so you won't know until after surgery.
All I can tell you is that you need to find the best possible surgeon that you can. Don't settle and ask questions about experience. Surgical experience is the number one factor in outcome. The second is tumor anatomy and you don't have control over that.
As for life, pituitary issues are lifelong and must be managed. You need a good doctor and a plan to manage and keep up with things. Most of us do pretty well but it will be a new normal, and may not be 100%, some of us get close though. Good luck. I won't be back for a while as I have cancer surgery so don't think I am ignoring you.
I've been reading about the growth hormone stuff, and it sounds like I can expect not to live as long based on this. How scary...