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Recovery from Maningioma Surgery
my wife had a 4 hour surgery for Maningioma (benign) on the left brain 2.5 months ago. The doctor said the size of the tumor was like a tennis ball. The problem is she cannot speak...has only been able to speak couple of words that too after about 1.5 month and find it hard to speak those words fluently. She also has not been able to walk on her own...her right hand and foot are weak...she still can not lift her above her chest and it pains her if we try to help her excercise...they say her muscles tissues are weak.....she however recognize everybody since day one and understanding what is going on....though some time when older things are discussed she tries to remember.... i am wondering how long will it take for her to be able to walk and speak and what more should i do........she has been on physiotherapy Omer
She may need to shunt to relieve pressure. Let us hope she does not need another surgery!
It is heartening to know that you recovered well though it took some time...and i wish and pray for your good health.
Yes I am patient, ready for a long recovery period , as for my wife, i am worried about the lump still visible, last week the surgeon thought i after viewing CT scan that this lump may be due to concentration of water in the operated area. He gave AZM tablet but after taking 3 tablets for a day she felt some reaction so he stopped it....he said that if it remains then they may have to install shunt...(I am not in favour of it and hoping that it gets better) but the encouraging thing is that the lump seems to receede a bit this week...and now she is trying to speak although he words are not clear.....last but not least....he bones has not yet joint....
thanks and god bless you...
Yes I am patient, ready for a long recovery period , as for my wife, i am worried about the lump still visible, last week the surgeon thought i after viewing CT scan that this lump may be due to concentration of water in the operated area. He gave AZM tablet but after taking 3 tablets for a day she felt some reaction so he stopped it....he said that if it remains then they may have to install shunt...(I am not in favour of it and hoping that it gets better) but the encouraging thing is that the lump seems to receede a bit this week...and now she is trying to speak although he words are not clear.....last but not least....he bones has not yet joint....
thanks and god bless you...
I hope she recovers well. The OT will help. Please be patient - I am sure she is trying as hard as she can and I know I was very tired and had very little energy after my surgery for a long time. Keep us posted!
Thanks again for your response...
The surgeon has recommended Occupational Therapy....she is begining to try and speak though the world are a little garbled....after surgery she has no problem what so ever.....i know i have to be patient.....and i am....hope you are doing fine.....
take care
The surgeon has recommended Occupational Therapy....she is begining to try and speak though the world are a little garbled....after surgery she has no problem what so ever.....i know i have to be patient.....and i am....hope you are doing fine.....
take care
Ignore my response UGH... I was thinking macroadenoma... I was not reading right... sorry!
I do think you should get the pathology and read up on the tumor however - make sure the nature of the tumor is one that was expected, and will not recur.
If it was near the pituitary, then the above applies, but not unless... sorry!
I do think you should get the pathology and read up on the tumor however - make sure the nature of the tumor is one that was expected, and will not recur.
If it was near the pituitary, then the above applies, but not unless... sorry!
Besides the surgeon - is the also being followed by a NEURO-ENDOCRINOLOLOGIST? She may need hormone replacement and when the replacement is done, she will feel much better emotionally (and maybe the diabetes can resolve if it is type 2, even the BP issues - all that can be pituitary!).
What type of tumor was it? Non-functional or other? Did you get a copy of the pathology?
She will need lifelong follow up by an endo - what is the endo doing?
What type of tumor was it? Non-functional or other? Did you get a copy of the pathology?
She will need lifelong follow up by an endo - what is the endo doing?
hi...there...
thanks for your response...i really appreciate that... regarding your questions...she complained of pain in her thighs about an year or half before surgery.....but approx 4 months before surgery she started to forget things.....complained of severe pain in right thigh....then a month or so ago her conversation began jumbled up....i mean she would destract from the topic....couple of times just fell....bye the way she is diabetic and was taking blood pressure tablets....
No she didn't have a stroke during surgery....yes she had a large lesion...the location was on the left side of the brain....well the surgeon is very skill full...and anesthesia was ok too....
yes...i was told and knew that recovery will take a while....physical therapy was started immeidately after surgery till now...and now being advise for occupational therapy....
she is being regularly checked by the surgeon....i am patient just want her to be recovered as some times she cries in helplessness that is very painful for me....any way good news is that she seems to understand most of the things....and started to try and speak a little clearly few things....and after surgery there is no complaint what so ever of headache...head spin...or fever....i am patient and am willing to see her recover as soon as possible....
In the end appreciate your response and wish you best of health..
thanks for your response...i really appreciate that... regarding your questions...she complained of pain in her thighs about an year or half before surgery.....but approx 4 months before surgery she started to forget things.....complained of severe pain in right thigh....then a month or so ago her conversation began jumbled up....i mean she would destract from the topic....couple of times just fell....bye the way she is diabetic and was taking blood pressure tablets....
No she didn't have a stroke during surgery....yes she had a large lesion...the location was on the left side of the brain....well the surgeon is very skill full...and anesthesia was ok too....
yes...i was told and knew that recovery will take a while....physical therapy was started immeidately after surgery till now...and now being advise for occupational therapy....
she is being regularly checked by the surgeon....i am patient just want her to be recovered as some times she cries in helplessness that is very painful for me....any way good news is that she seems to understand most of the things....and started to try and speak a little clearly few things....and after surgery there is no complaint what so ever of headache...head spin...or fever....i am patient and am willing to see her recover as soon as possible....
In the end appreciate your response and wish you best of health..
What was her condition as far as walking, speaking, etc before surgery? Were you told that this would be a side effect of the surgery? Did she have a stroke during surgery?
Surgery is a trauma - and a few of us here know that recovery is not an easy thing. Your wife had a large lesion and depending on location, skill of surgeon, anesthesia, etc etc etc recovery can take a while and some things may not come back fully.
What you are describing with her remembering some memories but not newer ones can happen - short or long term memory might have been effected by either the surgery (location is key) or the anesthesia and could be temporary. I know after my surgery, it took me a while and years later, my word recall is still impaired.
She may need occupational as well as physical therapy and the recovery is going to be long term. I know people tend to think that since a tumor is benign and recovery should be quick and easy - but surgical recovery is the same and it was a large lesion, there can be a lot of residual swelling left... Make sure you get copies of the tests, operation reports, pathology etc. so you have the information you need to know the situation and be patient.
Surgery is a trauma - and a few of us here know that recovery is not an easy thing. Your wife had a large lesion and depending on location, skill of surgeon, anesthesia, etc etc etc recovery can take a while and some things may not come back fully.
What you are describing with her remembering some memories but not newer ones can happen - short or long term memory might have been effected by either the surgery (location is key) or the anesthesia and could be temporary. I know after my surgery, it took me a while and years later, my word recall is still impaired.
She may need occupational as well as physical therapy and the recovery is going to be long term. I know people tend to think that since a tumor is benign and recovery should be quick and easy - but surgical recovery is the same and it was a large lesion, there can be a lot of residual swelling left... Make sure you get copies of the tests, operation reports, pathology etc. so you have the information you need to know the situation and be patient.
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