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327385 tn?1378360731

my neuro surgeon forgot me?

i am getting worried that my new neuro surgeon has forgot me . i will give a little back ground because i havent been on in awhile. i had a craniotomy in 06 for a 22mm tumor ,,my tumor camr back on may 5th 2010 and i had gamma knife.i know its weired but both my tumors was treated in may. i had went in 10 for my follow up and the tumor had shrank to a speck.. my new neuro/surgeon told me he didnt need to see me for 2yrs.. i had my last mri in 2010 and im getting worried because i havent got my mri yet and when i call to ask why i dont get an answer and i never get a call back. i have tryed to get a new surgeon and allways get told mine is the best in ky. i am getting sever migraines and getting some of my symptoms i had before.i have talked to my hubby but as allways its all in my head.. my hubby tells me hes worried and dnt wana talk about it so im alone again..im sorry for venting again..i dnt know what to do about the mri. could my mind be playing tricks on me making me have these symptoms ? anyone have numbess on the surgery side ?    my old surgeon had me going for mris every year so im confused why its been 2 1/2 years since my last mri. what should i do about my mri to be scheduled ? is 2 1/2 years to long to have an mri ?
7 Responses
Avatar universal
COMMUNITY LEADER
Given your set of symptoms, yes, 2.5 years is too long IMHO.

I am not in favor of your hubby's ostrich method of dealing with your health.

Do you have a friend or another family member who can call or take you in to the surgeon?
327385 tn?1378360731
its sad but i have gotten use to keeping my mouth shut and feelings of im just imaging the symptoms..my hubby is so jealous i have no friends anymore..i will just have to drive myself ..my mother is scared to drive in lexington ,same for my sister and my brother works .. i have been treated very bad by my inlaws..my mother in law has told everyone i have went crazy after i had my (brain thing) ..i have gotten in fusses with her and baned her from my house because she gives me anixety and i have seizures not long after ..she doesent want to have nothing to do with my 3 kids but on there bday and now they dnt wana have nothing to do with her ,,she hasent spoke to the kids in over a year and of course ats my fault cause im crazy..i know this has nothing to do with my tumors but it started with her telling everyone my daughter was her dead son and had my daughter believing that ..i went face to face with her over that and she left crying ,,she has been so crule to me..i get made fun of my weight gain ..i had to get that off my chest ..she sent word that if my kids went to stay the night my hubby had to stay to and that was over a year ago..because of her thats why i have alot of anger because they made me feel ashamed of my tumors and me staying sick all the time..my hubby is on my side and has nothing to do with her anymore..i will call my surgeon today and agg the sh*t outa them ..that is all i can do at the moment and i will drive myself ..i need help and peace of mind ..im sorry i vented all this but everyone is tired of hearing my problems ,,
Avatar universal
COMMUNITY LEADER
It sounds like you have a lot of home issues... (((((hug)))))  

Friends are funny though - I bet if you call them up, you may find you may still find a *real* friend who will rescue you. While all may seem lost, see if you still can reach out so some and get some emails going.

You are allowed to vent all you want. No one should make fun of you for all the health issues we fight with and the things we cannot control!
Avatar universal
go in to the hospital or the clinic where your surgeon is based and demand to have an mri. symtoms arnt in your head and although anxiety is playing a little role, which is normal in ypur situation i think you need an mri for reasurrance. as rumpled said friends are a funny bunch and if you phoned someone saying you needed help im sure someone would put their hand up. x
Avatar universal
Sometimes stresses in our lives can cause the migraines, headaches, I am not saying you should not have an MRI, but stress can cause a lot of physical symptoms as well.

Forget your MIL....she is not worth losing any sleep over...As far as your weight, just eat healthy and go for walks if you can. Sometimes weight gain can not be helped if caused by medical problems.

Can you get an appt. with your family doctor? Maybe he can set up the MRI. Make an appointment with him concerning your headaches if you have too...
327385 tn?1378360731
i called my surgon and the nurse called me and told me he looked over my 2yr old mri and he said i would not need another mri for another year..i did talk to my family doctor and waitng for my insurance to give the ok for an mri. i have decided to just wait and try to get the ok from the insurance.. i know the worry and stress can play mind games . im just gona give in and stop the fight with my surgon and wait another year . im tired of the fight over this. i have lost my friends over crying over there shoulder and the friend that i had just ignores me so i just stopped trying to talk to her.i have stopped the obession with the worry of the tumor and l just turned my back on the the tumors and just dont wana talk to my family and forget it all. thanks to everyone that has helped me and has supported and hasent judged me threw this ..i think im done now
Avatar universal
COMMUNITY LEADER
I can totally relate to the loss of friends - my non-sick friends have no idea what I am/was going through and slowly but surely, I lost pretty much all of them.

I rely on a few sickies like me, online forums and all to help.

I have to say though that once I was done with surgery - I have not seen a surgeon again. I do all my follow up with an endo? So why are you still seeing a surgeon? Why isn't your endo on top of your monitoring as well or instead of? A PCP is good, but out of realm of expertise...

It is not easy with a chronic illness that few understand.
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