Wow...so much information. As I said when I went for my routine in December a very small spot was found. In June the same spot was found and from what I have been told they found what appeared to be 16 mm in size.
They took out 15 nodes and one was positive. I will (after I see doctor's this week) relay what was said and go from there. I really appreciate your input and expertice in this as I know you have all been thru this.
I will also request a MRI be done BEFORE any treatment. I waited for my patology test for three weeks before I got it. So between the results taking so long and my second surgery to clean up the mess from the Mastectomy I'm behind the 8 ball a bit.
I did not have radiation. When I was first diagnosed, I had extensive high-grade DCIS comedo form in one breast found by my routine mammogram and verified by a more focused, digital mammogram followed by a surgical biopsy. An untrasound showed nothing. I decided to have a mastectomy and did the following week. Lo and behold, when they analyzed the tissue, I had a 5mm tumor hiding in there that turned out to be Est+/Pro+ and Her2+. I had no radiation because the tumor was wholly self-contained in the tissue that had been removed with wide, clean margins. I had 19 nodes removed and all were clean. So, I was considered a stage 1. But the Her2 gene seems to be able to make cancer grow and spread like a higher stage, so we treated me very aggressively with Taxotere, Carboplatin and Herceptin, a study drug Zometa, an osteoporosis drug that has a preventative effect on breast cancer returning as bone cancer, and tamoxifen. Does this help? Let me know what I can do for you. Cheerpul
And one more thing... if you don't feel you are getting straight answers feel free to change doctors. This is your journey and your life. Get the right help for you. Ask questions and don't let them let you walk out with a pathology report without it being explained to you.
Feel free to post your pathology report and we will help as much as possible.
I'd want an MRI done immediately. The CT scan is higher in radiation and if you do decide on the radiation treatment (which I would do) they will do one anyways.
I had stage 3, grade 3 invasive lobular carcinoma and my mass was 10 cm. It was invisible on mammograms and only a small piece 1.5 cm was found with ultra sound. The 10 cm mass was found with MRI. Be aggressive with treatment. You can do this :)
To date I have only had the mamograms, core biopsies and radical mastectomy. I have three doctors appts next week and hope for once that I can get the same answer from more then one doctor.
Should a CT be an option or should it just be part of the treatment? I just want to ensure that I request all the tests to have a very accurate picture of what/where I need to go.
Cheerpul, did you have radiation and if not, could I ask what stage you were. I tried to read the pathology test and I think it said Stage II
My mom has a mastectomy two years for non invasive but has been a real pillar of strength. I'm glad I found this site and have others to share my worries with. I'm a 45 yr old (up to now - healthy female) , never sick, until now.
What tests have you done so far? Before I had my mastectomy I had a mammogram and ultrasound, core needle biopsy, MRI, CT scan and then PET scan.
Are you set up for chemo and rads? I'd do both. You have invasive breast cancer and you don't want even ONE nasty cancer cell to survive to produce and multiply.
You think so, Im terrified of what and where to go next. How do I know that the only node that the cancer is containted if they only took 15. I have been told by one of the RN's to request a CT to make sure that the cancer has been localized for treatment?
Node positive ... I'd definetly do the radiation!
I got through a mastectomy and chemo by using my energy to turn worry into active study and taking charge of my attitude. Focus on the facts you know and don't allow yourself to what-if as much as possible. Get tests to know as complete a picture as you can, talk with your doctors and nurses. Make a treatment plan and then do it. We are all much stronger than we ever thought possible. My motto is: Adapt and/or endure; with laughter. Having a positive node changes everything. You will want to be aggressive in your treatment. Thinking of you. Cheerpul