Hi,
I am 28 years old and have now had 20 Fibroadenomas removed in 4 seperate surgeries. My first 2 (one from each breast) were removed when I was 16. The adenoma removed from the left breast was the size of a lemon and from the right was the size of a lime. My second surgery (21 years old) entailed the removal of 9. Third surgery (26), 5 were removed. This past years I had come acrossed more but one imparticular, was extremely painful, and woke me up often throughout the night. In August I went in to have this particular on and the others removed. 4 total were removed in this fourth surgery. Unfortunately once the swelling had finallly gone down enough to do my first post-op breast check I found the one I had gone in for specifially had been missed. When I went in for a follow up the ultrasound they imaged the one missed as well as found another four in the same breast at only 2 months post-op. I am now being told that a double mastectomy and reconstruction in the only option I have left. For that I am terrified! My adenomas seem to not follow the typical characteristics, they do not regress and just continue to grow larger and larger for one. They are now growing in more excessive number at a faster rate than ever before. So has you can imagine I am totally lost on what to do next. My surgeon says there is not enough research to answer my questions and concerns. I have come to except that this is a part of me and I just want to know and understand what is going on inside me. Maybe someday be a part of the answers to questions that can't be answered yet. I figure the first place to start is to get as much knowledge about my unusual experience with fibroadenomas. So my questions: Are there other breast masses commonly mistaken for fibroadenomas? Could there be another issue somewhere else in my body that could be causing this? If not is there a specific named for what is happening to me?