The wait is so hard. I need some advice please.

[Stephanie9803]

First of all, my heart goes out to all of you and you are all true heroes. I have a multitude of health issues. The main one being my Ehlers-Danlos Syndrome that causes far too many other things. I also have a special needs son that I have devoted the last 10 years to. Please don't be too critical on me for not taking care of myself as I should. I've been hard enough on myself lately. My last normal PAP was 11 years ago. But first a bit of back story. I was raped when I was a child. I ended up with HPV and Dysplasia when I was only 15. I did the treatment for that and haven't had any problems since. 4 years ago I had an abnormal PAP when I finally took the time to go in since before my son was born. I was going through a lot and missed an appointment. The next one for my retest 6 months later I was sitting there on the table and my OB\GYN was called out for a delivery. Finally I am in a place to where I have decided to take care of myself because I haven't been well in a long time. Then something I have coined "Stephanie Luck" struck again. The nurse didn't get the sample done correctly. My Dr said he saw many lesions and I had the most friable cervix he had ever seen. I go in to have a redo. Turned out a week later there was too much blood in the sample for them to examine. We wait another few weeks and I finally stopped bleeding for them to do a THIRD PAP. I just got the results after 2 months of attempting to. I have ASCUS and HPV16 positive. I have every textbook symptom of cervical cancer except for the weight loss. I am on steroids for life due to a brain tumor I had removed though. Now my Dr wants to wait a couple of more weeks to do a colposcopy and biopsy bc he wants to make sure my cervix is healed from the last PAP. I'm dealing with a lot with my youngest son being diagnosed with Avascular Necrosis in his legs now and being confined to a wheelchair along with several other things crashing down on us at the moment. The worst thing in the world right now is waiting...not having any idea what's going with me. Is there much of a chance that it's going to come back showing no cancer at this point? Should things be moving a bit faster? I don't know who else to ask, so

[old_before_my_time]

I am so sorry for all you are dealing with. You certainly don't need these gyn issues on top of everything else.  Medications that suppress your immune system such a steroids or chemotherapy can cause abnormal paps. I don't know what percentage of these end up being dysplasia or cancer. Of course, the HPV 16 increases your risk but isn't a given outcome.

It seems reasonable to let your cervix heal before another procedure (colposcopy). Keep us posted on what you find out. I hope it is nothing serious. Best to you in getting your son the help he needs too.

[Stephanie9803]

Thank you so much.  I am trying to think positive.  It's getting harder as the wait gets longer.

[Stephanie9803]

Well it's cancer..we finally got an official answer after a biopsy Monday. :(