I was DX with a Neurenteric Cyst witch is a congenital Intradural cyst and from what I can gather is similar to an Arachnoid Cyst.
On my MRI report this Cyst is described as "A variant of Split Notochord Syndrome"
My mobile version of this won't let me vote. But no. I haven't. But than again I am barely dx with chiari. Who knows what else will unveil it self down the road.
CW...I know in the past 2 yrs....there have been a few...I have not had a dx of ne cyst in or of the brain.
hi i have, i had a 4.1cm one compressing my spinal cord, in in thoeriacs region T7 T8 T9.(sorry my spelling)its very rare to get there, i had it removed nearly two yrs ago,
im getting more MRIs and hopefully i havent got another one, also i read the chiari can cause cysts, (spinal ones and brain), i hope this helps
where is your cyst if you have one?
Your cyst compressing your thoracic area...did you have pain in that area? Just wondering how they found it. I have had 6 MRI's in the past year, but over the last few months have developed pain in my mid thoracic area, almost unbearable at times. I know my MRI's were of the brain and C-spine and would not have imaged down that far. Just interested in your story and especially if this cyst caused you pain.
(I have a 8mm chiari malformation with "some blockage" of spinal fluid) Thanks!
I was diagnosed with chiari malformation, about 2 years ago. I also have an arachnoid cyst.
imsorry i never noticed the question,
but yes i had pain in the back, it was like having a knife stabbed in that area, and nothing relieved it,
i have just had another MRI and it had showed another cyst forming in T5, its small, but already flattening my cord, i have severe pain in my chest, back and left arm, i cant get rid of the pain, i use any drug i can get my hands on, but a hot shower seems to help at times, very painfull, everytime i went to hospital, they were checking my heart because of the type of pain, im now having B/P problems and spiking heart rates,
how has it been? did you get any results
:-\ Yes, I got the lets wait and see what happens answer. The cyst is protruding outside of the skull, in the skull has grown substantially as well. Looking around for a second opinion right now.
Yes i have a Arachnoid Cyst and Chiari 1 and i am in so much pain i can't even shower by myself :(