Hi and welcome to the Chiari forum.
Have u had related conditions ruled out? Many of the related conditions can cause many of the same symptoms.
Have u had a MRI to make sure u do not have another obstruction of CSF?
Are u sure ur issues are not weather related?
I know this is a lot of questions but it can help determine what u may want to look into next....
I had decompression surgery twice and still having headaches one 6 years ago and the next a year later, dizzy spells, ringing in my ears that is so loud sometimes I turn the tv up and my husband looks at me like ...... Well you know. Shoulder, neck pain, I just can't seem to get off the couch some days, like today, because my head hurts so bad. I have taken so much medicine today, nothing is helping, I just don't know what else to do. I'm so tired of these headaches! Anyone have any other suggestions?
I'm sorry. Good luck and I'll hold you in my thoughts.
Sending u <3 ((hugs)) and prayers....and some hope mayb he is wrong.
Keep us posted and know u r not alone in this regardless of the outcome or news u get....
So very sorry to hear you received this news today. I have a dear friend who has ALS. Not a diagnosis anyone wants. Hopefully you will get some definitive answers when you see this specialist!
Keep us updated please. Sending you positive vibes :)
I'll keep you in my thoughts and prayers,
Hi, I'm so sorry to hear about this. I will pray for you.:-)