My daughter was originally diagnosed with pseudo tumor cerebri in May, 2017 after an opening pressure spinal tap of 56cm. After this tap she went through a series of 4 more taps with steadily increasing improvement in opening pressures (last one was 27cm) all of which relieved her intense headache pain until the 5th tap. That headache, which started on January 25th of this year has never gone away. Her latest MRI shows a mild (approx 2mm) cerebellar tonsillar ectopia which I only found out about by showing the MRI to another med professional (the MRI report states everything is normal). We saw a NUCCA chiropractor yesterday who says since her neck is leaning to the right (clearly visible on the MRI) it could be compressing venous flow and contributing to the problem. He said he can try do a series of adjustments and will know within a week if he can help provide relief. If not, he will recommend surgery.
Has anyone else ever had relief from a NUCCA chiropractor? There seems to be some question as to whether or not 2mm herniation could even cause her symptoms which are debilitating: intractable migraine for over 150 days, POTS symptoms (dr. has referred us for tilt table test), fibromyalgia onset 2 months ago, flares in pain where we would have previously gone to the ER but now we know no pain medicine (IV or otherwise) can give her relief, dizziness etc. etc. She is 14.