Hi and welcome to the Chiari forum.
Lisa, so many of us get dissed by drs that I call it the Royal Chiari Runaround....we have to educate ourselves and be our own advocates....we all wish we didn't have to but we do.
The link below has names of chiari NS's...but u do need to find a good NL as well....use the names here as a starting point and do research,...these r not referrals, but names of drs that other members here have used and liked.
U have to find the dr u feel comfortable with.
Try to get this NL to understand, u only want to know what is going on..ask if they will do more testing...like a CINE MRI to see if u have a CSF blockage and overcrowding......
Dr. Lynn Hedeman
Great Lakes Neurosurgical Associates
414 Plymouth NE
Grand Rapids, MI 49505
Dr. Karin Muraszko
@ C.S. Motts Childrens Hospital
Ann Arbor at the University of Michigan
Hang in there and keep pushing