Hi and welcome to the Chiari forum.
The decompression surgery is done to restore CSF flow so that surgery would not benefit her. Are you sure her Chiari or low lying tonsils were acquired?..I mean, are you sure she didn't have Chiari before and her injury just triggered it?
And was the Dr that saw her a true Chiari specialist?
Hi JillibilliMom, I'm sorry your daughter is going through this. I too had a smaller herniation with many symptoms and my cine flow study came back normal. I saw many neurosurgeons who claimed to specialize in chiari but really weren't "true specialists." I ended up having surgery with Dr. Bolognese and it helped a lot. I have other issues and am not 100% but I can function now. Also during surgery, they use intraoperative Doppler ultrasound to look at flow before opening you up and my flow was reduced, it just seemed normal during the cine flow mri, but it wasn't.
Also, I sent my images and a description of my symptoms to Holly Gilmer of Michigan head and spine institute and she also agreed that chiari was the problem. She and her staff were very helpful. I never saw her in person as long island is closer for me, but just wanted to let you know since you are in Michigan if you wanted a second opinion. Who knows you may have already seen her?