Aa
Aa
A
A
A
Close
Avatar universal

Chiari surgery, memory loss & depression

I was diagnosed over 2 years ago but never got around to going to the Chiari Institute in NY as suggested by my geneticist, mostly because I also have Ehlers Danlos Syndrome and know so, so many people who have had the decompression surgery and nearly all failed.  So they say, it's due to also having EDS.  However I have been suffering terribly for over 5 years with severe short term memory loss & was even put on Aricept (usually used for Alzheimer's) about 5 years ago & have become increasingly severly depressed.  I seem to be resistant to all or most anit-depressants, years of therapy &  more.  I have only recently found that all of my symptoms could actually be related to the Chiari & was actually told be a friend who knows more then any doctor I know about EDS & Chiari.  I'm also an RN & am a bit embarrased that I haven't gotten myself checked & had to find this out from a friend, after seeing so many Doc's for so long.

Question: Have many of you had the same symptoms & had surgery & done well with the symptoms disappearing afterwards & which Docs have you used?   Thanks so much for your help.
2 Responses
Sort by: Helpful Oldest Newest
620923 tn?1452915648
COMMUNITY LEADER
check out my friend Laurie Yeh's blog.......you may find some similarities there.http://laurieyeh.blogspot.com/


Godspeed
"selma"
Helpful - 0
570413 tn?1299532661
Although we did not take my daughter to TCI, I would think if you have EDS and Chiari, TCI (w/ Dr.B) would be the best place for you.

I am curious, whom is your geneticist?

I suspect that my daughter may have EDS.  She was just recently diagnosed with joint instability by a ortho doc.

Can you tell me what your symptoms are?

Thanks,
Rebeca
Helpful - 0
Have an Answer?

You are reading content posted in the Chiari Malformation Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
987762 tn?1671273328
Australia
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease