I’m really short of breath today and it’s teakly worrying me :(. I know it had to be my brain stem being compressed could I be near respiratory failure?
Please have your Parathyroid levels checked ! Parathyroid, not thyroid.
Another thing I have to get ruled out is a pituitary tumor because my low testosterone.
I’ve been having a lot of issues with my muscles tightening up and gett cramps too. Is that apart of chiari or could that be something else you think? I’ve also had muscle fasiculations or twitching would be the easier word. I’ve had the muscle twitching since this all started years ago I was worried about ALS for the longest because of it but I had emgs and stuff that were negative.
I'm feeling really weird today.... I'm getting really lightheaded and getting this really weak feeling its so hard to describe.. It feels like its hard holding my body up and I just don't feel right. Do you think I should go to the ER? I know you've got a lot of experience in chiari when is the time to go with chiari.
Hi Selma is it possible I have craniocervical instability? I did notice on my last mri my c-1 spine was touching my brain stem. I read that’s it’s more common with EDS Hypermobility which I definitely don’t have. Or could it be possible I have a spinal leak causing the chiari
Have you heard of chiarians complain about their hands feeling off or disconnected and hard to use? My vision has been too lately. What worried me is how fast this has gotten worse. For months I’ve been just kind of use to everything and then yesterday everything went horrible. I was suppose to see an endocrinologist yesterday about my low testosterone but needed up going to the ER due to the severity of my symptoms. I felt so faint, weak and short of breath I didn’t know what else to do.
What I’m really worried about is how fast these symptoms are progressing. The lightheadedness is near constant now I’m getting these chill feelings in my back and in my legs and I feel really sick to my stomach. Could this be some kind of complication to the chiari? Does it sound emergent enough for me to go to the er you think?
Is this post still active? I really need some advice this all so scary... I don’t even know how I’ll see a neurosurgeon without any insurance...
Hello everyone I went to the er today with near fainting feeling and disoriented feeling. They did blood work and ct scan and to my surprise the radiologist noted that I had a Chiari Malformation 5mm… I’m in total shock and not taking it very well :(. 3 months ago I had the mri of head and Cspine that I posted above that was read as normal. Now I get a ct scan and they note chiari… Did they miss it 3 months ago or is it just bad enough to see now? I’m honestly devastated but now at least I know what’s going on with me
Selma it wouldn’t let me message you back. Do you know of any specialist near Memphis?
I also found out a month ago my testosterone was really low, which my doctor ran other blood work trying to find a cause. If a have a basilar invagination couldn’t it flatten my pituitary gland causing the low testosterone? I am seeing a endocrinologist in 3 weeks about the testosterone maybe he will refer me to a neurosurgeon..
Selma thank you for all your help I truly appreciate it.... My biggest problem right now is I have no health insurance which makes everything really difficult :(. I’m currently going to a clinic that accepts patients with no insurance. I’ve mentioned to the doctor I’ve been seeing there about chiari and he just totally shoots that idea down. My only Chance at this point would be for him to refer me. I mentioned at least needing to see a neurologist and he just don’t think I need to see one despite my daily headaches head pressure lightheadedness and breathing issues...
From my understanding the brain stem should be completely straight right? In basilar invagination it bends forward I believe. If you look at the picture of my mri it’s bent down... I’m so lost at what to do I know something is wrong with my brain structure or something. I have daily head pressure and pain in the back of my head, near faint spells, and the smothering sensations making me feel breathless.
I had another mri of my brain and cervical spine 2 months ago in the er which was normal according to the report. Wouldn’t you think they would have saw it on the cervical mri? Here are the reports.
EXAMINATION: MRI BRAIN & STEM WO CONT, 3/20/2018 10:20 AM, MR180009127
CLINICAL INFORMATION: Loss of fine motor skills, facial numbness, tremors
COMPARISON: None
TECHNIQUE: Multiplanar/multisequence imaging of the brain was performed without intravenous contrast.
FINDINGS: There is no restricted diffusion to suggest acute ischemia. There is normal appearing anatomy at the craniocervical junction. FLAIR imaging demonstrates no focal parenchymal signal abnormality. There is no midline shift. Normal void signal is present in the internal carotid and basilar arteries. There is no evidence of recent hemorrhage or a mass. The visualized paranasal sinuses and mastoid air cells are clear.
EXAMINATION: MRI SPINE CERV WO CONT, 3/20/2018 10:20 AM, MR180009128
COMPARISON: None
TECHNIQUE: Multiple pulse sequences were performed in the sagittal and axial imaging planes without contrast.
FINDINGS: The cervical vertebral column demonstrates normal vertebral body height overall marrow signal and alignment without fracture or listhesis. Disk spaces are well preserved. The cervical cord is intrinsically normal. Cerebellar tonsils are in a normal anatomic position.
C2-C3: No focal disk herniation, canal stenosis, or foraminal narrowing.
C3-C4: There is a minimal left uncovertebral joint hypertrophy. No significant foraminal narrowing or central canal narrowing.
C4-C5: No focal disk herniation, canal stenosis, or foraminal narrowing.
C5-C6: No focal disk herniation, canal stenosis, or foraminal narrowing.
C6-C7: There is very mild posterior disc osteophyte complex which is not cause significant central canal or foraminal narrowing.
C7-T1: No focal disk herniation, canal stenosis, or foraminal narrowing.
The facet articulations throughout the cervical spine are grossly normal in appearance.
IMPRESSION: Minimal cervical degenerative change without significant central canal or foraminal narrowing. Normal appearance of the spinal cord.
Could my shortness of breath be due to brain stem compression? I’m also constantly lightheaded now too
Hello it’s been awhile since my last post. I’ve been doing a lot more research and it’s looks like I may have basaliar invagination are you familiar with that? Does it look like that could be the case in my picture?
I’ve been dealing with progressing symptoms for years this has to be it because I’ve had so many other tests done and ruled out a lot of things. This all started back In like 2012 I started having like these spells where it felt like I was gonna black out which doctors claimed was panic attacks.
Yeah I’ve looked at so many mri pictures on the web and mine definitely doesn’t look like the normal ones. Couple things I haven’t mentioned which I didn’t think could be related was off and on nausea and diffulty swallowing. So this really could be chiari? What do I do from here can I go straight to a neurosurgeon or do I have to go to a neurologist first?
Does it look like chiari?
Hey Selma I posted a photo of one of my pictures on my page. Its not a great one but doesn't my tonsils look low?