Does anybody deal with these Chiari symptoms?

[imahoney33]

I was curious if anybody else suffers from attacks from Chiari that feel like a panic with myoclonic jerks, pressure in the head, and weird movements.These attacks are crippling me. I had the decompression surgery in 2015.I also have Belly Dancer's Syndromes non stop.

[selmaS]

Hi and welcome to the Chiari forum.
The Belly Dancer Syndrome is a rare one and one that has not cropped up here before.....panic attaks have.....head pressure , yes, weird movements, sometimes referred to as trembling, or just odd shaking movements have been experienced by other members.
I am curious if you were DX with any other related Chiari conditions? Syringomyelia , Tethered Cord, Ehlers-Danlos Syndrome?

[imahoney33]

No, just Chiari Malformation Type 1. I also had an ACDF surgery to fuse my C5 and C6.

[selmaS]

Were you tested to rule those other conditions out?

[imahoney33]

Sorry for the late response. Yes I have been tested for common conditions associated with CM. Recently I have been seeing an increase in cluster like headaches, and the belly dancer syndrome is just getting worse. I have no choice but to work so I feel like I am in hell 24/7.

[selmaS]

Have you been checked for scar tissue at the surgical site?