Guess this isn’t active anymore?
The constant throbbing in my head just won’t go away. Could that be from the chiari blocking fluid?
I'm sorry ive posted so much on here I'm sure you all are tired of seeing it. I'm honestly just unsure what to do anymore ive been to the er countless times and they never do anything. Ive had everything else checked out so I know most of my issues are from the chiari.. I see my PCP next week and I'm goona try to get him to refer me to a specialist I found in Nashville.
Also has anyone heard of chiari causing shortness of breath? That’s been getting worse too
Thank you everyone for the responses I really appreciate it. Is heart palpitations common in chiari? I’ve noticed my heart like skipping a lot lately and beating slow..
And I keep getting really bad lightheaded spells..
Ok guys I’m really worried today. I’m having this really bad full feeling in the back of my head, my hearing is really muffled sounding and my dexterity in my hands is really bad and I’m just not feeling myself :(. I’m so scared this is something serious. Does any of this sound familiar or have you heard other members complain of these things? I’m feeling really like disconnected to....
It just really worries me because the pressure and pain aren’t going away just makes me scared it’s serious :(
Also I’m hearing a lot of of popping like fluid in my head with the pressure could that be from increased pressure?
Also do all neurosurgeons require a referral for consult?
Thanks Selma I’ll check it out. Does this sound like increased cranial pressure?
No idea, it could just be the Chiari.....have you had a CINE MRI? Chiari headaches can cycle...meaning they can get worse or better...all depends on you OR the weather....the weather is a hugr factor in how we feel....if you are having bad weather now or in the next few days your head can act like a barometer.....so do not stress over what it might be and try to find a Dr that is a true Chiari specialist and will test you for ALL related conditions and will look to see if you have a CSF obstruction.
Try to relax.....lay in a darkened room with your favorite music playing...or take a warm soak in the tub....I hope your feeling better soon.
Just a little update I saw the neurosurgeon back in march. He reviewed my scans with me and showed my my chiari saying it was roughly 7mm. He said at this time he does not recommend surgery... He said if I were one of his family members he would tell them the same that its better to wait... I guess I was hoping he would say that I needed the surgery and I could end this suffering.. The past two days have been really bad ive been having horrible pressure in the back of my head. I'm worried its hydrocephalus or something similar. Does the severe pressure warrant a trip to the er??
A little update. I saw my neurogist yesterday about the resumts of the mris of the full spine all normal besides some degenerative changes in my cervical spine. No syrinixs or anything like that so thats good news. I am finally seeing the neurosurgeon feb 26 i hope to get some answers. My lightheadedness has been so bad this past week but my neurologist said chiari doeamt cause lightheadedness is that true?
Ok Selma i needs some of your great advice. This is gonna be kinda blunt but here it goes. Last week i noticed during sex right as i was ejaculating I got a severe pounding headache in the back of my head that I've never had before. Now every time I attempt to even have sex the pounding headache starts. I went to the er thinking maybe it was a aneurysm or something related. They did a ct scan which was normal. Can this be chiari related or probably something unrelated? Now i can even cough and i will get the pounding headache and its got me real concerned. Also yesterday I broke out into a sweat for no reason at all..
Another thing that really worries me is that the headaches just started to get really bad everyday just a few weeks ago. Could it be something else causing the headaches like Intracranial hypertension? Or is it more than likely just the chiari?
Does anyone visit this board anymore? I really need advice..
Just a little update, I saw the neuro in October about the results of the mri. She pretty much told me she didn't think it was bad enough for surgery, but she said she didn't know much about chiari. She said she was giving my scan and everything to a neurosurgeon and he would review it and decide if I need surgery.
Last I heard I someone one from neurosurgery would call after he read everything. I still have yet to get a call and my symptoms are getting worse fast...
The head pressure in the back of my head is almost constant now and feels like my head is in a vice and I can hear spinal fluid popping in the back of my head. I'm so scared that's it serious or something now.. I called the neurologist about the worsening symptoms and they scheduled me an appointment February 7th. I went to the ER last week because of the worsening head pressure and everything. They did a ct scan which was normal. Should I go back to the er since things are getting worse or is that pointless??
I’m going on a family vacation to Florida and I’m so terrified everything will get really bad because I’ll be in the heat.
Ok today I’m really concerned I’m feeling real out of it and confused it’s hard to describe but I find it really difficult to think clearly. The past couple of days I’ve been feeling off like something different is up idk. Could I have hydrochepalus causing these symptoms? Or could this just be chiari causing the confusion and stuff?
For the past few days I’ve noticed a burning sensation acros my whole back it feels like it’s on fire or something. Is this a chiari thing or could that be a syrinix?
Well I saw the neuro yesterday and I believe I’m getting a CINE mri because she said she needed to speak with a radiologist about what type of mri I need and I just expect that to be it. Honestly from looking at my last mri it doesn’t appear to be any obstruction with my tonsils blocking spinal fluid I think most of my symptoms are from brain stem compression abs the fact it’s kinked.
Hi, i'm 21 and I got decompression surgey 13 months ago and still experience shortness of breath, dizziness, and feeling disassociated all the time. i totally understand how unnerving it is but it's comforting to hear other people feel this as well. i don't have another MRI or appointment scheduled until october, so please let me know if you find out any more info on this from your doctor. good luck, praying for all of you.