Thank you Dr Park for posting this in the Chiari forum...sleep apnea is one condition that many chiarians do suffer from and many times it goes undx'd.
Case in point a little 9 yr old boy that had chiari surgery, but died afterward, his drs never checked him for sleep apnea....what a loss, a needless loss and we need more info.
SO thanks again : )
I will not be able to make it for this forum but I do have a question. I am not sure if these are sign of sleep apnea so requesting so feed back. I was diagnosed with Chiari (states is mild and tonsils are low lying) and Syringomyelia.
I do snore and over the past few monts I have been awakend by a awful feeling as if my throat is closing and I can not breath. I then keep swallowing as if pushing air down and this then causes me to puke. The last episode frightened me as it seemed more severe then the other two times. I put a call out to my neurologist and left a vm with his nurse with the details and rather I should be seen and have yet to hear back from anyone. I tried calling back two days later and still have not heard back. He told me that my chart is on the doctors desk with details of my call and along with my mri results, I have yet to hear back.
I guess I was just wondering if this was a sign of sleep apnea or possible complication from Chiari?
U can still submit ur question for this chat even if u can not be available to participate on it.....I am not sure Dr Park will be on here to view these posts...so u may want to sign up for the chat....it will give u a way to retrieve the info of the chat afterward.....and allow u to submit ur question to be asked during the chat.
Thank you Selma. I will do that
How do u get transcripts of this discussion???
U have to sign up for the chat and then they send them to u if u can not be on the chat.....u can try the link and see if u can get it that way....but , in the past I signed up b4 the chat and got an e-mail.
I checked it out jenny and the link will. ask for ur e-mail info and ur name, but it takes u to a place to download and listen to the chat...in fact there r several other chats that u can for free download....all relating to sleep apnea.
Thanks selma im gonna check it out tomorrow