Back story: I had Craniotomy 02/2012 to remove meningioma from sphenoid sinus area, compressing my right optic nerve. After surgery, for about 5-6 months, I would awaken with my right eye area being so swollen that it looked like I had a golf ball under the skin. I was told this was CSF pooling which was common post-op and it would eventually cease (up to a year!?). Was told to sleep in an upright position to allow CSF not pool just in the facial/head area.
More recently I have been waking up with a dried fluid around my nose that must have leaked while I slept. I also have swelling all over my face, especially on the right side and my lips are swollen like during an allergic reaction. As I go through my day the swelling goes down and my face returns to its normal shape/size.
In your opinion, could this be related to CM1? I've asked my NS (who is NOT a Chiari specialist) that did the craniotomy, and was told that it was probably allergies. I have trouble with this explanation because that would mean I have an allergic reaction to something that I only come in contact with in my bed!
I'm waiting now to hear back from The Chiari Institute regarding setting an appointment, having sent in MRI cd's and information forms for both myself and my DD (17 yrs old) w/in the last 2 weeks. Hopefully we can get some more testing done for related conditions and find out what treatment plan will be best for each of us.
swollen and confused,