Hi and welcome to the Chiari forum,
Chiari is a congenital condition that symptoms can be triggered by an accident such as a fall, or MVA even a hard sneeze or cough.
Only ur Drs, be they Chiari specialists can tell u if ur Chiari is congenital or acquired by the force of the fall.....
If the Drs determine urs to be congenital, then u have no leg to stand on, even tho the fall triggered the symptoms.
For those that have always had Chiari some r not aware of all the symptoms they have always dealt with as they consider them "normal"....They should cover ne injuries that resulted in the fall...so u need to determine is it acquired or congenital.
Please keep us posted
Thank you for your reply.
I look at this as as educational experience from which to
I will always share my findings of things that help as
evidenced by my last post. May my experiences help
You are so kind and devoted to us by your open forum.
It must take enormous time and energy on your part.
May you be finding relief as well..
I know these things are hard to get a big win on as it is not well understood and an accident can trigger symptoms, but they see it as a congenital condition so, it is hard to get the pain and suffering covered.....
There is no way to know if ur symptoms would have increased or remained insignificant...as this "guy" hit u and changed ur reality....
SO sorry, hope u have gotten some relief.
I have a Chiari accident situation so unbelievable you will say, "How
can this possibly be", but it is I lived it. I just finished a Chiari made
symptomatic accident case that lasted FIVE years and 3 different
attorneys. I did not have the terrible Chiari symptoms before
but I was disabled from a previous head injury. Because the
symptoms can be somewhat similar the case ended up miniscule
for the amount of heartache and stress endured. The man that
hit me had (I AM NOT KIDDING) one eyeball that was so distorted
by being freakously located in the very corner of his eye you could
only see his iris and the other eye was gazing out in left field. This
man is still driving with a drivers license and was never given
a medical test. Oh, by the way he claimed he "lost his brakes"
and hit me from behind at a light. Oh, also by the way this guy
worked (maybe still does) for a well known auto insurance company.
Yes, yes, yes car accidents do make Chiari's worse and symptomatic
but this is what you are up against.
As I said u need someone to determine if ur Chiari is acquired or congenital, it is typically a congenital condition, but it is possible to develop as a result of an accident.
It is also possible to have it with no symptoms or issues, so it can be there ur whole life and u not be aware of it until u have an accident or fall....then it changes and u will notice going forward....so, it is hard to say,and of course if the ins comp can get out of paying they will....
Thanks for getting back to me so quick! all my doctors say the fall could of triggerd the chiari. my point is i have done a lot of heavy lifting and been tossed around and i have never had a issue very healthy very fit i
'm a maintenance tech working on lifts lines exc. before that i climbed tree's for the power lines i just feel like i would of had problem's by now as much as i put my body thru. i only had problems after a fell on my neck. i read of others having the same issue but they had problems before the age of 20 the others that have problems after seems to be in cause of some kinda of accident. workman's comp was sending me to pt for buldging disks but once they told me i had chiari then it was cause i was born with it. i'm just really fustrated. don't get me wrong if this help then great i have been in pain over a year. i still think it's because of the fall.
thanks for you imput!
how do i prove this i'm 36 yrs old never had a problem untill i fell at work and now i have a 9mm chiari malformation. i am a maintenance mech i also gotot the gym 5-7 days a week well i used to until i fell a year ago. now they are trying not to pay for my surgery cause they say i was born with it?
Nice to meet you. Sorry its under these circumstances.
I too lived in Las Vegas several years ago.
Could you tell me the name of the NS at Shands you were
referred to. I was referred to one but I cannot remember his
name. When I looked up his bio on healthgrades Chiari was not
listed as his main interest although I was told it was.
Is UAB an airforce base?
Have a pain free day.
Hi fellow sufferer, lol I just moved to Fl from Vegas and finally saw NS today. I'm being sent to UAB. I was given choice of Shanz in Gainsville or Birmingham. UAB is closer to me near Pensecola. But was told both had Great NS specializing in this condition. Hope it helps. I hope I get a call quickly to go to UAB. Today was yhe first time ever I got real answers and was totaly taken seriously. Praying you all find relief in some way.
I was told that I was born with it but symptoms weren't severe until after I had two falls/concussions about 4 months apart. I had moderate symptoms since I was about 16, however I had no idea what was causing the dizziness, etc. As a teenager, I was told that I was probably having panic attacks so I dismissed all of my episodes. Anyways, my doctor thinks that the falls seriously intensified chiari problems.
Did u look at our list of Drs ?
I know there is one in Miami...and not sure there is one right in Jacksonville....but do take a look at the list and do some research of the drs on it.
Glad u liked my idea : )
That's a great idea. I wish I had thought of
it. Thank you Selma!
MRI tomorrow. Anyone out there know of
a good NS in Jacksonville, Florida?
I wish you well on your surgery!
I did not have the surgery so I don't know about memory improvement.
I do have a novel way of dealing with pain that is very
effective if you want to learn. Better explained over
the phone....natural...no drugs. Takes 5-10 minutes max.
I didn't even get to ask my chiari dr yet since cdnt think by the time all tests were done. But have a followup w him in 2 weeks. Will ask all questions then. My surgery is scheduled for the 7th. One new question that popped in my head for all you that had the surgery is: did your memory improve after the surgery?
Good luck and do keep us posted....they seem to say one thing and do another...next time they say they will do it have a pre written statement ready all they have to do is sign it....
Thanks for your reply. I did have a NS say he would back
me up in front of two other people and then he never followed
through. I do have additional MRI's (3) since '08 MVA.
Will followup with doctors here.
Hi...many with chiari have had a MVA trigger the symptoms ...and there r things u can do to try to keep things from getting worse if that is what u were asking...we all have diff activities in our daily lives that may be a trigger...something we need to avoid. Know ur triggers and get the rest u need...and keep a journal of ur triggers and avoid them when possible.
The problem with the 2000 MRI report, is they r using old criteria for when to determine chiari...they go by herniation and that is not the only criteria and it is not the most important...so, that is not a trust worthy report, but do get copies to take along for ur NS to compare.
I have to ask u to re ask ur question-[Also, is there a way to
ameliorate (sp?) MRI'S making symptoms much worse. ]
I am not sure what u r asking ...
Thank you for your reply. You are a real trouper when it
comes to your support of this site!
I had an MRI in 2000 which stated I was at upper limits of normal,
NO DEFINITE CHIARI 1 MALFORMATION. I was having no Chiari
symptoms at that time. Then with MVA 2008 herniation descended to 6 mm with terrible Chiari symptoms.
Have you heard of a reputable and compassionate NS in the
Jacksonville, FL area. Not able to travel. Also, is there a way to
ameliorate (sp?) MRI'S making symptoms much worse.
I know that my symptoms were brought on about a month after a slip & fall accident where I ended up with a minor concussion & whiplash. Tile floor, fabric softener spill by my then 2 year old, and I slid and hit my head on the door. A month later I started having dizzy spells, would get car sick, had a weird buzzing sensation in my entire body, headaches, & numbness in my arm and hand. I'm sure I had CM before the fall due to some symptoms in the past, but the fall certainly brought on a flare of symptoms. Over about 14 months my symptoms slowly got better & most went away entirely. However, I've started having some symptoms come back lately & am obviously not happy about that.
In fact, the symptom checklist sent to me from the Wisconsin Chiari Center asked something about having your symptoms start within a few months of an accident.
Hi.....I do not know if this is something ne Dr would agree to sign a statement to, but, they will tell us that a MVA can aggravate and trigger symptoms....the problem is for the most part many with chiari have congenital chiari not acquired....if it were dx'd acquired, then mayb a Dr could in fact make the statement that the MVA made chiari worse or created it in the first place...but with congenital chiari it is not an easy line to draw.
DO u know if ur chiari is congenital or acquired?
I can't believe so many of us are having the same problem
Please see www.*****.com and search Trauma Testimonials.
You will see more people who have had this problem.
I spoke to a NS Expert Witness in Florida who told me I
will never find a NS in Florida who will back me up.
I'm not quitting. Can anyone help with a NS in Florida
who has backed them up on a MVA making a Chiari
All the research I have found states we are born with chairi, but I know for me falling, dropping thing's heavy lifting sure made my chairi progress enough to have to have surgery. I am sure an accident would put a lot of pressure on the brain and cause more problems. Sorry about the accident, but dealing with insurance co. It will probably be a hard thing to prove. As for some of you already said. Dr's won't put nothing in writing.
My close friends husband developed Chiari after he was rearended in a car accident. Surgery was within 3 weeks of the car accident.
i never had any problems until i hit my head and it was all down hill from there! week after week things became worse. vertigo, pain in back of head and neck, hard to swallow, numbness in face and arms. like i said no problems until i hit my head. i was born with the chiari and it never was an issue until i hit my head.