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1063386 tn?1287878569

Hi everyone

Just wanted to say hello to everyone and I hope u are all doing well


My daughter made all stars for softball so I have been very busy with that.  Sorry for not checking in more    The long days at tournaments and this excesive heat has been really taxing.  

The shunt works but only to relieve about 50% of the pain so I am still not able to live the way I need to. (I feel like I let everyone down since this was suppsed to "fix" this).  

I sure hope all of u are well.  
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1667208 tn?1333107849
What do you have for a shunt?  I am so sorry that things are not working out as you hoped.  I am walking down that same path and quite sad and confused about things right now. Had my decompression just over a year ago, had a pseudomengecele repair the end of June, resulted in chemical meningitis, then emergency brain surgery two weeks ago and am now waiting through some things to see how things go.  Weird night headaches with pressure on the front of my head, I am crossing my fingers that I will not require a shunt because it seems everything that you hear about them is bad.  My NS says it would be a shunt though in my back instead of my head??? I have no idea, I only know I don't want one.  I feel like you, I thought things were going to help and I feel like I have only made my life worse so far.  I just want to feel like I made the right choice.  This process has proved to be very long and very stressing and some days I find myself wondering what it would be like to feel like I did before the first surgery.  After three surgeries I am just stressed and afraid of another one!  What type of pain do you have from your shunt?  I wish you well, the Chiari journey is long!
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620923 tn?1452915648
COMMUNITY LEADER

  Hi Ang...so glad to hear from u...and congrats to ur DD and her team!! who hoooooo : )

Sorry to hear the heat is getting u and the shunt is not helping as much as u would have liked....but it is helping some, that is a plus : )

   Hope to hear from u again soon

     "selma"
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