Hidradenitis

[thieb9]

Just out of curiosity, does anyone here suffer from hidradenitis? I have heard that some people with Chiari also suffer from certain skin disorders and just wondering if anyone else has this?

[onedaysoon2010]

I am sorry to bump up such an old thread, but I suffer from Hidradenitis Suppurativa ... And the funny thing is how I got here. I was reading a post somewhere and someone said something about their butt dimple :) Because I was told, when I first started getting the abscesses, that I had a butt dimple. "Just the way you were formed I guess" is what that dr. said. Then butt dimple lead sacral dimple which lead to abscesses (just a thought forming in my mind) which turned into my typing "hidradenitis suppurativa chiari". Who would have though that this could possibly be related? But I had thought about it because my dermatologist said that my HS was linked to my hormones and my immune system being out of whack ...

WOW ... The things a person can learn ...

[*Stormy*]

It is truly amazing what we find out can be connected to Chiari...ppl may call me crazy but I am sure that having an inflammatory condition comes hand in hand with Chiari. So many of us have Hashimotos that have Chiari...so I completely understand why you try to connect the dots...I have been doing the same thing!!

Lu- That sounds terrible and painful...I have eczema (surprise, surprise...another inflammatory condition!) quite bad at times where it actually makes it too painful to even use my right hand. I have huge cracks in them and I have to wrap my hands in plastic wrap just to do housework!! I would definitely check with your PCP...places of skin contact are also places where you get eczema so it could be that as well. Have you ever tried a prescription steroid cream?

Carolyn

[lu7997]

Omg omg omg. I recently like 3 months ago developed a hoorible rash under both arms and under my breasts. I thought it was from the heat of summer and being over weight. But I am a very clean person and it would not clear up. So I switched deoderants from the brand I have been using since I was in highschool thinking I had developed allergies and no change. I tried treatments for yeast infections thinking it was from topical yeast.  And no changes. It is still horrible and painful at times. All I can do is keep it clean and dry and pry it doesn't crack open and bleed again.  I am going to ask my pcp about this but I doubt he will know.  


I swear every day I fall apart more. And someone on here always seems to have the dame broken parts and I suddenly feel normal if only in an abnormal society.  : ).  


Thank u for this

[thieb9]

Unfortunaltly this is another condition I have, although I never really assumed they were realted, more of a curiosity. Its a terrible condition, and there is no cure and most treatments are ineffective! ugh just another thing to add to the list.

[selmaS]

Hidradenitis suppurativa (also known as "Verneuil's disease", "Pyoderma fistulans significa," and "Acne inversa" is a skin disease that most commonly affects areas bearing apocrine sweat glands or sebaceous glands, such as the underarms, breasts, inner thighs, groin and buttocks.

Here is a description of this condition...

......and I do agree with Carolyn that this may be distantly  related.....the auto immune issue is something we all deal with....I also wonder if it has ne connection to Ehlers-Danlos as u can develop cysts with that as well.

"selma"

[*Stormy*]

I'm not sure if this would be a Chiari related thing exactly but it does seem to be related to inflammatory Auto-immune conditions, and those seem to run with Chiari for some reason. Have you ever been tested for Lupus or RA? I would ask to if you have been dx with this.

I can't say that I have hidradenitis but I have definitely had some weird things happen to my skin, boil like lesions that show up all of a sudden and are painful. However, I have also found that this happens sometime with Hashimotos (another thing you may want to get checked out).

Carolyn