Hi...you had decompression surgery already ...correct? You also stated an issue with your ankles....have you had that looked at? I wonder too, if you had a full decompression or if you had a dura placed.....?If you have EDS which could cause your joints to sublux....fall, that could explain your ankle issue and possibly why you continue to have symptoms.
Sleep apnea is a huge issue and you need to have that looked at too....ASAP !!!
Do you have a Chiari specialist?
I used to hallucinate too before my decompression. I never told my doctors about it because I didn't want one more doctor telling me I had an anxiety problem. It would happen when I woke up in the middle of the night, often times feeling like I had to breath, I think I had apnea too. My vision would be a little blurry, sometimes I had vertigo, and sometimes my heart rate would be be high too. And my ears would be ringing really loud. I think it was all related. It happened maybe twice after surgery after I did way too much. it was like I was looking at a picture on the wall that would move with my eyes and then gradually fade.