6346533 tn?1441299047

NS convinced its not my chiari causing my symptoms anymore!

I had decompression surgery for my chiari in oct 2013 and still gettin all my symptoms now.
They went away almost compleatly for a litte bit but a month or so after my op the started slowly coming back and now its the same if not worse sometimes than it was before the op!
At first i just thought it was me recovering from the surgery..
Then it got worse not better so went to see my NS and he told me it was my sinuses that were the problem now making me so poorly and in pain.
He said he was convinced thats what it was and sent me to ENT.
Well i went to ENT a few days ago, and he did tests, put a camera up my nose and down my throat, and had a chat with me about my symptoms and he says its not my sinuses.
He said the most of the symptoms im getting are not even sinus related. :S .. He said he is convinced its not that!
But put me on yet more antibiotics anyway for a month this time to see if it has any affect at all, but i have been on 3 different ones already in last 3 months :( ..
And i have to go back and see him when ive finished them but he wants to send me for more scans on my head to see whats going on as hes sure its not my sinuses.
Grrr .. Frustrated.. Confused.. And a little nervous now..
Has anyone else had the same issues? What was the out come?
My NS seems sure my chiari is not causing it now but its like i never had the op!
But i feel like he doesn't belive how much pain i am in and just thinks because ive had the surgery im all better now!
But im not.. And all i want to feel better ..
Even just a little bit would be helful but feeling worse than ever now :(
10 Responses
620923 tn?1452915648

  It is possible to have symptoms return depending on a few different causes....one an underlying relater or non related condition....or u could have something that resulted from surgery, and last u over did it and caused a set back.....

May I ask what is the worse issue u r dealing with, is it the same symptoms as pre op or are these new, but just u feel as bad as pre op?
6346533 tn?1441299047
Hi thankyou for replying..

Mostly the same symptoms as before my op, the same headaches that drive you to tears and pain in the neck and top of the back, the dizzyness, feeling like i have no energy and no matter what i do im in pain, feeling sick, hearing noise no1 else can and i really struggle to concentrate more so when reading things.. there are more but these are the worst and most consistant.

I do seem to be getting more pain down the middle of my back than before thats kinda new like right down my spine. i didnt get that often before and now seems almost every day i have it for atleast a couple of hours.

Also the concentrating is worse now than before it really cant seem to keep focused when reading, the words just dont seem to register i my head at first and i feel i need to squint but had my eyes checked out and nothing is wrong i have been told.

The headaches at times feel worse now than before but not all the time, i constantly have headache but the intensity does vary day to day.
620923 tn?1452915648

  When did u notice the issue with reading?

Do u notice if the HA dissipates if u lay down?

What do u do on a daily basis?....What activities are u back to doing?
6346533 tn?1441299047
Noticing it more and more over last couple of months really,

It doesnt seem to make a differance if im laid down, sat down or stood if its hurts bad, it hurts no matter what.
But sometims if i lie down i can feel it banging more like it has its own heartbeat.

And i work from 10pm to 2am, so usually up about 10am, have breakfast, watch some tv for a little bit, go for a walk usually in the afternoon sometimes to the shops (10 mins away) or to my dads (15 mins away) or my friends (10 mins away) if its my dads or friends i stay for a couple of hours usually have a cuppa, go home make tea and get ready for work. Thats about it. sometimes more, sometimes less depending how i feel.

I did try doing a little more excersise than just walking but found it made me worse so stick to walking now.
620923 tn?1452915648

  At what point post op did u go back to work and what do u do there, what are ur duties, Sorry if u already told me, but I do not recall.

It could be u were doing too much too soon....how many hrs a week do u work?
6346533 tn?1441299047
I had my op in october 13 and returned to work almost 6 weeks ago now in feb 14,
I work in a warehouse but have had my duties amended as i can no longer be a picker with all the heavy lifting and bending for 8 hours a day was no longer an option.
I now sit at a desk and scan in and out watches to colleuges and put them away and charge the batteries ect.
I have been doing part time hours building up slowly from 12 hours for 2 weeks to 16 for 2 weeks then 20 hours for 2 weeks starting at 3 days building to 5 days.
620923 tn?1452915648

Are u able to get up and walk around every so often? And is ur computer monitor raised so u r looking at it on an eye level?

Take note what type of lighting u have as it too can affect how u feel, florescent lights can really get my head pounding.

Make sure u r not hunched over the desk...and that u r not sitting for long periods at a time...u need to get up and walk around ur chair a few times every so often....

Do u know at what point u started to feel poorly?
620923 tn?1452915648

  Most of us do have some symptoms return around 3 months post op, and u went back to work at 4 months....not sure I could have if my job would have been still there....

I know u slowly built ur time up, but it may have been too much too soon for ur body....mayb try to cut back for a little to see if it helps.

Do u still have ne FMLA time left?
6346533 tn?1441299047
Yeah I do get up and walk around I have too to charge the batteries for the watches,

Yeah I move the monitor to where I need it and the lights are probably not great thou.

I went back as soon as my NS said I could as I couldn't afford to be off any longer :( ..

That makes me sad I was supposed to be goin up to full time again in a few weeks but maybe that's not a good idea then :( ..

What is FMLA ?

And I've been feeling more poorly since about December and it just got worse and worse x
620923 tn?1452915648

  Family Medical Leave Act....it is for businesses or employers with 50 or more employees....it protects ur job when u r out on a medical leave, so they can not fire u until u come back, u need to qualify...working full time for a yr, or up to 1250 hrs b4 u could be considered for it....and u only get paid if ur company provides paid sick leave and vacation pay......it allows u to take up to 12 weeks unpaid leave to care for ur self, or a family member.

Some use FMLA to return to work partially so they get paid for the time missed ......again ur company must offer paid sick time to be able to get paid like that other wise u can work part time and use ur 12 weeks in hours and days....

Could be u were not ready to go back to work....just bcuz the Dr feels u were ok only u can tell if u were ready,....and I know money wise we all need to work....but not at the cost of feeling worse....
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