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1755706 tn?1312487770

Need help in Harford County Maryland

I am 45 yrs old and for years have had headaches and dizziness and pressure in my head, but all the drs said it was migraines.. In 2009 it started to get worse with numbness and actually getting to the point to where I could not speak, sweating profusely, dizzy to the point of almost passing out, and really lethargic. I still took it as migraines that is what i had been told in 2010 I had a spell so bad that they had to call ambulance and it landed me in hospital for 3 days with all kinds of test to find out I have Chiari 1. As I have done research on this and found that all I have been experiencing is due to Chiari, not only that i have a bulging disc at C5-6 that is abutting my spine and deforming it.

Does anyone know of a neurosurgeon in the Harford County area, I have had 3 Drs tell me surgery, one being a neurosurgeon which I had to stop seeing because he did not take my insurance. I was sent to one today only to be told it is all in my head and that the numbness and tingling and numbness in face and pressure in my head and neck where not from Chiari or from my bulging disc. I do not know about anyone else but I am getting frustrated and down right disgusted, I am tired of of this and just want some relief... I do not take kindly to being told that i do not know what is going on with my own body.. Does anyone know of a good neruosurgeon in this area the help would be greatly  appreciated.

6 Responses
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314892 tn?1264623903
Make sure you have Ehlers Danlos Syndrome ruled out before any surgery. Dr. Henderson can help with that.
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Just make sure this NS is well experienced with chiari...and not just a NS that doe chiari surgery...there is a huge diff btwn the 2...and u want the better of them/.

   Good luck/keep us posted : )


    "selma"
Helpful - 0
1755706 tn?1312487770
Just wanted to let you know that the original neurosurgeon that said he did not take my insurance, well now he takes it and I am going to see him on the 25th.. All things work out for a reason and I really did like him he listened to what you had to say and did not make you feel as though you were crazy.. So now I will go from here..  
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  No worries...there is also a Dr Rosner in NC....many of us do find we have to travel to get  to the right drs that know this condition.

  Please keep us posted on ur Dr search : )

    "selma"
Helpful - 0
1755706 tn?1312487770
I am not too far from Bethesda, about a hour or so. I have heard of someone else speak of a Dr. Henderson. Thanks for the info I will check and see if he takes my insurance.. thanks so much for the info..




wornandtired
Helpful - 0
620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

I am not familiar with MD and where u r in relation to Dr Henderson, but he is in Bethesda and  is well respected. U will want to travel to get to a true chiari specialist instead of finding a NS that works with ur ins. Appeal to ur ins that u need a specialist in this field, they may reconsider and cover the costs.

We do have a list of Drs here for u to research drs...u can also call and see if ne of them work with ur ins, but also make sure they have the experience u need and want.

  http://www.medhelp.org/health_pages/Neurological%20Disorders/DOCTORS-LIST-FOR-CHIARI-SYRINGOMYELIA/show/1062?cid=186

   "selma"
Helpful - 0
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