New CM diagnosis- "head rush" question

[Boymom12]

Hello!  First of thank you for this forum!
I am 33yrs old, headaches my whole life, true bad migraines started about 3yrs ago, diagnosed with CM about 2yrs ago.  I measure at about 7mm.  I have very slight symptoms compared to many of you that I read about!!  I feel bad even concerned with my daily struggles, as it could be much worse.  The only progression that I see is the "head rush" are more severe....as I am sure you all can relate it last about 5-20seconds (at this point) when I bend over, cough, sneeze, etc.  I have been to 2 NS, one suggested surgery other did not.  I am young and very active- the thought of surgery is scary and seems extremely premature.  I control my migraines with daily RX, but I would like more insight to the head rushes.  Has anyone noticed tendencies to yours?  Helpful ways to relieve?  I don't experience everyday and usually only in morning.   I feel like I am to the point of living with my CM, if I could just control these head rushes!!  

Any tips?

Also, I am in Dallas, TX- anyone have a good CM specialist recommendation?

[selmaS]

  I had never thought of it b4 either...came across it by chance and wondered if for some that get a HA after eating say chocolate consider they r allergic but it may be that it just caused inflammation in an already tight area making the HA more intense...it is very interesting to me how and y's of things and the way so much inter connects.....

There is a good possibility that we can help avoid a more intense HA, not sure just by eating these foods we would do away with them tho,

[Loriann6482]

Thanks for that link, Selma :) I try to eat right but anti-inflammatory properties of food is something I had never even thought to consider!

[selmaS]

  Here is the link to the Health Pages article

http://www.medhelp.org/health_pages/Neurological-Disorders/Anti-inflammatory-Foods/show/1023?cid=186

[selmaS]

  We do have a list of anti inflammatory foods that may help some....I will try to locate the list and bump it up....I also think u can locate it in the Health Pages.

[cougar05]

i also get the head rushes when i laugh, cough, blow my nose and sometimes when i bend over. i found it is worse when i have had to much salt in my diet( ie eating chips can cause it for me) also occurs with my period when i bloat and during extreme heat which also causes me to bloat or swell. i have decreased the amount of salt i eat which wasn't much to begin with. i avoid salt a week before my period to lessen the effects. i haven't found over the counter advil effective, it is an anti- inflamatory. i haven't tried pescribtion form yet as newly diagnosised and haven't been given any treatment options yet. if you found out anything that helps would love to know about it.

[selmaS]

  I am glad I asked as a head rush for me is when I get the chills that climb up and over my head.....

What u r describing is more of a head pressure and that can be due to a CSF obstruction or high CSF ...and that can be from over producing it, ur body is unable to absorb it....this is ICP or intra cranial hypertension.

POTS is Postural Orthostatic Tachycardia Syndrome     is a condition of dysautonomia. to be more specific orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia. Several studies show a decrease in cerebral blood flow with systolic and diastolic cerebral blood flow (CBF) velocity decreased 44% and 60%, respectively. People with POTS have problems maintaining homeostasis when changing position, i.e. moving from one chair to another or reaching above their heads. Many also experience symptoms when stationary or even while lying down.

SO take note if u get the head rush when u change positions...not just bending over as I had that too, but I was not DX'd with POTS....with POTS ur blood can also pool in the lower extremities so u feet may look red.....and keep track of ur BP.

source - http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome

EDS= Ehlers-Danlos Syndrome- this is a connective tissue disorder that affects the collagen that hold us together...many with this are also hypermobile or double jointed....there are many issues with EDS as easy to bruise, slow to heal, sensitivities to foods, meds and other things like latex used on band aids and surgical gloves....we do have a EDS group with links to videos with more info-http://www.medhelp.org/forums/show/417?camp=msc

[Boymom12]

Hello and thank you!!
Head rushes= brain freeze, feel like I am going to pass out, super pressure, throbbing pulsing pressure

What does the following stand for--
ICP
POTS
EDS

[selmaS]

Hi and welcome to the Chiari forum.

Knowing ur herniation is not the most important part of ur chiari DX...u need to know if u have a CSF obstruction and syringomyelia..so u should have more testing....waiting is fine as long as u do not have these issues...along with sleep apnea, ICP, POTS....EDS as they can affect other issues of ur overall health and waiting may not be helpful.....so do find out how ur Chiari is affecting ur overall health...many do not always feel the same symptoms or make light of some of them or not realize they have as many as they do....

We do not refer Drs....but we did compile a list of Drs that members have been to and liked, the list is not a referral or endorsement, it is here for u to use as a tool for researching them....

I know there are Drs in TX....can't recall names.....it is in the health pages....http://www.medhelp.org/health_pages/list?cid=186

Not sure what u mean by head rushes as many of us use diff terms and I do not want to assume....