Firstly, no I’ve not been tested for any connective tissue disorders. It seems around here Doctors still don’t have open minds about CM. And because their MRIs don’t uphold what I’m dealing with they call it psychological. In My Opinon CCF does NOT have a Chiari Specialist that knows their behind from their own nose. Yes, they have a guy in the Loraine facility that they tout as a specialist. He is worse than the quacks at home that don’t acknowledge CM. JMHO
So the question - I’ve not researched this here or elsewhere before yesterday. For a few years now I’ve been fighting severely limiting back pain and stiffness perhaps topping what I call Chiari Neck. Multiple doctors over the last few years have resorted to new MRIs which show some arthritic changes but nothing to explain the degree of muscle tightness. As we all unfortunately know finding answers is perhaps worse than the malformation at times.
The result of quacks not being able to find their answer in multitudes of tests is nothing. So they keep transferring my case up the line. Yesterday I finally made the drive back to CCF but not for Chiari. I’d not even thought of CM being the cause so I didn’t look. I have other medical issues that I’d assumed to be the culprit until yesterday. Namely a sizable posterior fossa arachnoid cyst that has been found to be partially communicating. And thus fenestrated twice now as it keeps resealing itself. It’s position complicates CM as it is attached to the rear of the cerebellum. Because of the location it can’t be removed and causes the same symptoms of CM plus occasional seizures. After yesterdays visit to the CCF pain clinic it dawned on me that this must be CM causing this??? Dr says no no it is caused psychologically due to stress. Eeehhh maybe but I don’t think so. Not saying my mind or PTSD symptoms are always under control but I just don’t see it in this case but I’ve been wrong before. Either way the recommendation it sounds like has been recommended also to treat Chiarians with back pain?
That said my question is out of curiosity - have any of you personally been prescribed Ketamine infusions? And if so did they actually make any difference in muscle tightness and pain?