I'm hoping it's Brockmeyer! Primary is amazing, and the only place in UT with accurate Chiari awareness of related issues. I wish I was pediatric to go there. I have friends who are nurses there. You will be in great hands! Prayers for you and your family!
That is great...do keep us posted on your surgery date etc...and then post op progress......and let us know who your Dr is so we can see if they are on our list of Drs that treat Chiari.
yes I did thank you! my parents and I emailed the doctor tonight and are hoping to hear back by tomorrow
I'm just in the children's neurosurgery at university of Utah and meeting the Doctor the day before surgery so I am not sure of his or her name but I'm sure it is online they are supposed to be very good!
Who is your doctor, with the EDS componant?
Hi I posted to this b4 and in your journal of the same topic...I hope you saw my reply.
I would not shave your whole head before surgery. Doctors shave different amounts, it depends on your surgeon. Mine shaved the entire back of my hair from the top to middle of my ear and down. I have thin hair and when I wear my hair down no one can tell I'm missing all that hair. Also, I've gotten some hats to wear in windy weather.
You can always shave your head after surgery if you come to the conclusion that's what you want to do. I don't think your hair will get stuck in your sutures like in your dreams, they are usually covered with steri strips for a while. I only had two removable stitches and one dissolvable suture that ran from top to bottom and was knotted and then the knots were cut about 15-20 days after surgery.
My hair isn't growing yet (who knows it may never) where the incision is so if I didn't cover it with my hair it would look like I have a line down my head at the bottom. Another reason the hair on the rest of my head comes in hand.
Also, not sure where you live and what the weather is like but my head felt really cold without the hair on the back of my head and I remember thinking i'm glad i'm not bald because i'd be freezing all the time.
They are concervative as possible with shaving in my experience. My advice would be not to cut a lot of your hair (just trims) ... And no pulling hair out of sutures. I was amazed by how easy the incision was to hide with longish hair once stitches came out.