Hello there, I found this website upon looking for answers about my Chiari and I was delighted to find that there was a whole support network. I have more knowledge than the average 17 year old on the subject of Neurology but have very many questions when it comes to my own case, as it's abnormal. And I was wondering if someone could point me in the right direction until I can call my Neurologist on Monday. I plan on becoming an active member of this site.
Okay so here are my concerns;
I had an CT Scan a little less than two years ago that indicated that I may have Cerebellar Ectopia. My dad didn't tell me at the time because I was going through some severe anxiety. In the last year or so I have been more stable and started experiencing severe headaches so my dad took me to my neurologist I'd seen a few times before. He was concerned that it might be Chiari, not just a slight Cerebellar Ectopia. He was right, but he said it was not likely to cause me too many symptoms besides maybe some headaches in the next 5 years.
There lies the problem. My headaches have been getting worse and have began radiating from the base working their way up, I've been having trouble swallowing, my balance seems off, my heartbeat does something that resembles orthostatic hypotension, and for a while now I've been extraordinarily nauseous.
Now, as an educated layman, This sounds like a bad case of Chiari, especially with my diagnosis.
Is it possible that a non-severe case of Type I chiari can turn into a full-blown symptomatic case?