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Recently diagnosed with possible chiari any advice for questions to ask MD?

Hi everyone,

I had an MRI on Monday and MD states my issues with my health are possible due to Chiari. I am scheduled for a f/up on Friday 7/19.

Does anyone know of a check off sheet for questions I should ask my MD. Are there things I need to ask but don't know that I need to ask? Any help would be greatly appreciated.

It took 4 years and multiple MD's, neuro's, ENT and gastro docs before I finally have an MD who is intelligent and trusts that I may know more about my body than she does.

Thanks!
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Avatar universal
Thank you so much, this will help me immensely!
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

We do have a list of questions for the NS, u may be able to use them for ur MD as well....they tend to refer to surgical questions and testing for related conditions etc....

Make sure they do a CINE MRI to look for an obstruction to CSF flow, and MRI's of the cervical, thoracic and lumbar spine to rule out syringomyelia, disk issues, tethered cord, as well as testing for ICP, POTS, and ehlers-danlos and last blood labs to look for low levels of vitamins and minerals and possible auto immune thyroid issues.

Here is a link to the Health Pages, and u notice many other articles with tips and names of Drs etc.... http://www.medhelp.org/health_pages/list?cid=186

The best thing u can  do is educate urself and research Drs that are well experienced with Chiari and related conditions. Know u r not alone : )
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