Oh ok....that may explain the possible bleed...did u have ne stroke like symptoms around that time?...just wondering, and it is possible that u do not have a bleed it is just something he feels u might have....so I would not focus on that....
Do let me know how ur visit with Dr Barrows goes...Good Luck : )
I want to also add that I was in a car accident in January.
Hello I just read your message no he did say anything. The only reason he told me anything is because his nurse scheduling the appointment while I was right there. He was like I don't know how to put it and I told him to just say it. He said I had Chiari Malformation type 1 with a syrinx and possible bleeding. He got me an appointment for Monday to see Daniel Barrow. I just pray everything goes well. Thanks for checking for me!!!
Hi...I got more info regarding a bleed with a syrinx...were u told u had a AVM? What symptoms r u having ?
Did they mention a stroke?
Hi and welcome to the Chiari forum.
First I have to comment on ur username...Nettypoo...lol...that is a nickname all of my nieces have for my sister-in-law Annette...lol...cute!!
I have to admit, I am not sure how or y ur syrinx might be bleeding other then having an injury to that area or a growth of some sort...this is not really something I can help u with, but I know someone that may....hang in there and I will see what I can find out for u : )
Hello my name is Lynette and someone told me you where the best person to ask my questions to. I was told that I have Chiari Malformation type 1 and syrinx 15mm and I was told today that my syrinx may be bleeding. Can you please explain this to me so that I can get a better understanding?
Ditto to everything Selma said.
I would only add that sometimes you can't tell what might bring symptoms on--it could be a change in the weather--just be aware that there might be triggers. Or not.
Hi and welcome to the Chiari forum.
To answer ur question"can symptoms disappear only to return a month later"
YES!!! Chiari symptoms cycle and can flare depending on ur stress levels and activity.
The other thing is there is no "fix" for Chiari...yes, ur NS may not have the experience with Chiari as it is not the herniation length that matters but if u have a CSF obstruction.
A CINE MRI is in order, and a MRI of ur thoracic and lumbar spine...u need to rule out syringomyelia, tethered cord, ICP, POTS, sleep apnea, ehlers-danlos....and check all vitamin and mineral levels.'
This will be a long bumpy road...but take ur time, educate urself...just as there r NS's that discount Chiari there r those out there that will do surgery even tho they do not have the experience and u can end up with more issues...so make sure ALL related conditions are ruled out b4 u consider surgery, and see a few NS's u know are true Chiari specialists.