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Results came back normal

I was diagnosed with Arnold Chairi type 1 in 2008 they were checking my pituitary gland and checking for any masses because of my symptoms and this came up. I've experience really bad headaches, dizziness, fainting, tingling on my arms, confusion, I'm always exhausted, hoarseness, difficulty swallowing. I have hashimotos as well and they believed that my symptoms could be related to that or my heart. My thyroid levels come within range so I don't think it's that I mentioned to my new Dr that I had an abnormal MRI so she repeated one and it came back normal at the time that she ordered it I didn't remember the name of the abnormality. So today when I went for my results she said everything was fine and I told her what happened to the Chairi and she said I didn't have that so I gave her my results from 2008 and she dismissed it and said that it meant nothing that anyone can have chairi it's common and it shouldn't cause these symptoms and that according to my new MRI I'm cleared. I'm confused and don't understand why I feel so sick constantly she's sending me to a rheumatologist I feel like I should see a neurologist. Can you be cleared of chairi or can you have a false positive? I'm so confused
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620923 tn?1452915648
COMMUNITY LEADER

  Hi and welcome to the Chiari forum.

  It is possible that  the Dr u r seeing is not well informed on Chiari....and it is possible for a MRI done differently can offer different views....for example....one slice can reveal a herniation that is of a certain size and a diff slice or angle can make it seem as it shrunk or grew.....

Chiari is congenital and will not go away on it's own...and even tho it seems Chiari is not rare it is also not well known or studied....so u need a  Dr well informed and experienced with this and related conditions.

U may feel confused, but I feel it is ur Dr that is confusing u....

  Do u have copies of ALL ur testing to date? Do u require a referral to go to a NL?

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Avatar universal
All I have is my old results which state
Findings: "Note is made of an Arnold Chiari type 1 malformation with the cerebellar tonsils extending 8 mm caudal to the level of the foramen magnum.
Impression: "Arnold Chiari type 1 malformation demonstrated"
But I don't have the films should I request a copy of my films from 2008?

& I have the paper with the results of this recent MRI it was done with & without contrast and that came back normal. Should I ask for copies of this as well?

I'm sorry I might sound a little dumb but what is an NL? Is that a neurologist?

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620923 tn?1452915648
COMMUNITY LEADER

  Yes, Deff contact the facility where u had the testing...do not ask ur Dr as most will charge u....but the facility will give u copies and should not charge u.

Ask for copies of all testing u have had and going forward of ALL tests u have.

Yes, sorry we do use a lot of abbreviations here...there is a list of most of them in the Health Pages.....but NL does mean neurologist.

http://www.medhelp.org/health_pages/list?cid=186
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Avatar universal
Thank you so much for all the information. I don't need a referral for a neurologist does this site have a list of Dr's that specialize in Chiari?
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620923 tn?1452915648
COMMUNITY LEADER

  We do have a list compiled by the members of NS's they have been to, treated by and liked, the list is not a referral nor an endorsement for those on it....it is only meant to be used as a tool to research them.

use the above link to the Health Pages to find the page.
Helpful - 0
4760166 tn?1398357313
Like Selma says ... always, always, always ask for copies of reports and discs of scans.  
Helpful - 0
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620923 tn?1452915648
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